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 State Systems of Care

Tips and Tools for Using the National Standards for CYSHCN – Sharing with State Autism Grantees

Date: November 14, 2014

This call featured discussion on the National Standards for Improving Quality Systems of Care for Children and Youth with Special Health Care Needs. The call included an overview of the next level of implementation for the standards and those domains that align with the focus of the state autism implementation and planning grants (e.g. Screening, Assessment and Referral, etc.) There was also an interactive discussion to showcase tools in development and get feedback on what resources would be most helpful to states.

  • Meredith Pyle, Senior Program Manager, CYSHCN, Association of Maternal & Child Health Programs - Presentation Slides
  • Click here to download the call recording (mp4)
  • The tools are posted on the AMCHP website here.


Building Systems of Care that Meet the Needs of Children & Youth with ASD/DD & their Families: Lessons Learned from Combating Autism Act Grantees

August 22, 2012

This webinar was the fourth of the Combating Autism Act Initiative (CAAI) webinar series, Research to Practice, and highlighted lessons learned from combating autism act grantees regarding building systems of care that meet the needs of children & youth with ASD/DD & their families. The CAAI webinar series is designed to showcase successes of CAAI grantees, connect attendees to CAAI grantees, and highlight CAAI activities. The series runs from April through August 2012 and will replace the annual face-to-face CAAI conference.

Participation Guide


  • Michael Lu, MD, MS, MPH, Associate Administrator of Maternal and Child Health, Health Resources and Services Administration
    Topic: Introduction
  • Nancy Cronin, MA, ASD Systems Change Initiative Coordinator & State Autism Implementation Grant Manager, Maine Developmental Disabilities Council
    Topic: Making Change in Shifting Sand: Implementing Universal Autism Screening in Maine
  • Donna Murray, PhD, CCC-SLP, Director of Clinical Services for the Division of Developmental and Behavioral Pediatrics, Cincinnati Children's Hospital Medical Center
    Topic: Improving Access to Autism Specific Services Using Quality Improvement Science
  • Patricia Osbourn, MA, SLP, CCC, CEC, Deputy Director of the Center for Development and Disability at the University of New Mexico
    Topic: Supporting Families and Communities: Systems Change Through the Development of an Autism Oversight Team

The full webinar recording can be accessed here. For audio only, click here.


Roles for State Title V Programs

February 1, 2012

This webcast highlighted findings from the AMCHP Issue Brief, Roles for State Title V Programs: Building Systems of Care for Children and Youth with Autism Spectrum Disorder and Other Developmental Disabilities (ASD/DD). The issue brief outlines a range of roles for Title V as leader, partner and facilitator; provides state resources and examples to share with policy makers in leadership, outreach and awareness, and family participation; highlights ongoing challenges in data and financing, as well as opportunities for collaborative approaches; and provides opportunities for peer-to-peer technical assistance.
The purpose of the webcast was to help states, primarily Title V programs, determine appropriate roles and approaches to building systems of care for children and youth with ASD/DD. The presenters provided examples from state programs to demonstrate the depth of involvement from state Title V programs and their partners.

Presenters & Slides:

  • Stephanie Birch, MCH Title V and CYSHCN Director Section Chief of Women's, Children's and Family Health at the State of Alaska Department of Health and Social Services, Division of Public Health; and Jimael Johnson, Public Health Specialist in the Women's, Children's and Family Health Section at the State of Alaska Department of Health and Human Service - Presentation Slides
  • Janet Farmer, PhD, Director of Academic Programs at the Thompson Center for Autism and Neurodevelopmental Disorders at the University of Missouri - Presentation Slides
  • Treeby Brown, MPP, Senior Program Manager for Children and Youth with Special Health Care Needs at AMCHP - Presentation Slides

The full webcast recording can be accessed here. The audio recording can be accessed here