State Spotlight: Utah


During Utah's grant period, it had one of the highest reported prevalence of autism in the nation. Utah's team consisted of the Title V/CYSHCN program, parents, academia (University of Utah and Utah State University), UPIQ, URLEND, Early Intervention, physicians, dentists, and schools.

To view Utah's State Grantee Profile, click here.

To learn more about Utah's work, visit Utah's Autism System Development Program webpage here.

Project Activities

Utah's team goals included:

  • Train medical homes (MH), pediatric dentists, and allied health care providers
  • Improve information resources
  • Pilot a systematic sustained Child Find campaign
  • Expand the capacity of Family Voices/Children with Special Health Care Needs family
    involvement program to provide support for families 

The project activities are described below.

Medical Home Learning Collaborative 

Utah's learning collaborative trained 30 practice teams (55 providers). The screening rate increased each year. Additionally, Utah promoted the Medical Home web portal that houses a variety of training materials and resources that families, medical homes, and providers can use when caring for children and youth with special health care needs.

The web portal contains resources regarding:Utah Web Portal.PNG

  • Newborn disorders
  • Diagnoses and conditions
  • Services directory
  • Screening and prevention
  • Building a medical home
  • Coordinating care
  • Transition
  • Patient Education Materials

To view the Medical Home Portal, click here.

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Child Find Project

Utah's Early Intervention Child Find project increased identification of ASD concerns at intake by 27% and decreased length of time for internal referral from 12 months to 3 months. A DVD has been developed with the Utah State Office of Education designed for use by general educators and administrators focusing on students with high functioning ASD in the classroom.

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ABCs of Autism Training

During the grant period, Utah's team developed "ABCs of Autism" trainings for parents of newly diagnosed children. The training educated parents on how to use tools and resources to care for their children and track developmental milestones.

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Autism & Faith E-Journal

A summit was held in 2009 that discussed Autism, Faith, and how families with newly diagnosed children can cope and thrive following diagnosis. A collection of YouTube videos and an E-journal were the product of that summit. Both contain tips and advice for families with newly diagnosed children.

To learn more about the Autism & Faith Summit and Journal, click here.

Successes & Lessons Learned

Utah had difficulty developing trainings for preschool special educators; however, they did develop a secondary level educational DVD about recognizing Asperger's. Successes included the development of the ABCs of Autism training for parents of newly diagnosed children, Medical Home trainings, and the Child Find Project.

To access more of Utah's resources through SPHARC's search engine, click here