State Spotlight: Oregon


Oregon has one of the highest rate of ASD in the country, and is in the midst of significant change to both the health and education systems as healthcare reform and education reform are occurring simultaneously. Regions of the state have experienced growth in the Latino population. Oregon has experienced challenges diagnosing children with ASD/DD.

To view Oregon's State Grantee Profile, click here.

To learn more about Oregon's work, visit the Community-Based ASD Identification webpage here.

Project Activities

The Oregon team goals are:

  • Assuring project implementation in alignment with recommendations of the Oregon's Commission on ASD
  • Creating Medical-Education ASD Identification teams in rural areas
  • Improving screening, referral and management of children with ASD within a medical home
  • Enhancing care coordination of complex services across medical home, community and specialty care
  • Supporting family-professional partnership in all levels of the project

The project activities are described below.

Project Advisory Committee

Oregon convened a project advisory committee to help guide the team's work. The committee met regularly in order to keep project activities on track and moving forward.

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Team Development

Team development was supported through trainings, webinars and technical assistance by phone, email and site visits.

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Oregon Pediatric Society

The team partnered with the Oregon Pediatric Society to help provide training to medical home practices on screening, referral and management. In the second year of the grant, they partnered with the Oregon Practice Improvement Project to facilitate and encourage practice change.Oregon Red Flags.PNG

To view the Oregon Pediatric Society's Main page, click here.

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Parent Partners

Parent Partners helped develop a toolbox of local resources for families to use. The OCCYSHN webpage houses tools and resources for providers and families. Plans are underway to develop a care coordination curriculum.

To view the tools and resources, visit the OCCYSHN webpage here.

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Family Involvement

Families participate on all levels of the project, including the advisory committee, ACCESS planning meetings, and ASD Identification Med-Ed teams.

Successes & Lessons Learned

Oregon had challenges remotely supporting the team process. There were also some challenges in regards to local team development because of state policy and local administrative changes. However, Oregon's team increased awareness of signs and symptoms of ASD/DD for the public and providers.

Some other successes include:

  • Establishing a local infrastructure for families to access autism evaluation through the ASD ID teams
  • Building family-professional partnerships through Parent Partners

To access more of Oregon's resources through SPHARC's search engine, click here.