Massachusetts is a geographically small, densely populated state with the majority of ASD services located near Boston.
Massachusetts's team consists of:
- UMASS Medical School-Shriver Center
- MA Department of Public Health Title V Early Intervention
- MA Department of Elementary & Secondary Education
- MA Early Education & Care
- MA Department of Developmental Services
- Federation for Children with Special Needs
- ICI/Children's Hospital LEND
- Boston Medical Center
- Tufts Medical Center
- Autism support centers
- Adults with ASD/DD
To view Massachusetts's State Grantee Profile, click here.
To learn more about Massachusetts's work, visit http://shriver.umassmed.edu/research/population-health.
Massachusetts's team focused on 1) assessing the needs of MA children with ASD/DD, 2) refining the existing state plan, 3) developing a program evaluation/surveillance plan, and 4) disseminating project information to stakeholder groups. Project activities are described below.
State Planning Project
The planning project responded to the Massachusetts Autism Commission's call for collection of data related to services for Autism Spectrum Disorders. In Fall 2016, the grantee team released the Massachusetts Healthy People 2020 State Autism Roadmap Report, which shares needs assessment findings to assist the Massachusetts Autism Commission in developing a blueprint for better data collection across the system of care that serves children and youth with ASD/DD and their families in Massachusetts.
To view the Massachusetts Healthy People 2020 State Autism Roadmap Report, click here.
To view Massachusetts's Autism Commission Report, click here.
Massachusetts used a mixed methods approach to conduct an in-depth mapping of accessible state data to establish a baseline for future monitoring. The team met with key informants and conducted focus groups in order to identify available data and system gaps.
Successes & Lessons Learned
Massachusetts' exploratory work provided a variety of data sources, including surveys, administrative data, time-limited projects, and other data sources. The key informant interviews also yielded valuable information and has directed their work in filling information gaps. Some challenges included institutional concerns, differing priorities, existing databases not capturing ASD-related information, and professional differences in understanding.
To view more information and resources, visit the Eunice Kennedy Shriver Center Population Health page here.
To access more of Massachusetts's resources through SPHARC's search engine, click here.