State Spotlight: Iowa


Iowa's Title V program for CYSHCN is uniquely located in an academic medical center. In addition, Iowa has a large amount of grandparents living with their grandchildren, where 32.7% were responsible for their grandchildren under 18 years of age.

Iowa's team includes Child Health Specialty Clinics (Iowa’s Title V CYSHCN program), in collaboration with the Iowa Autism Council; Autism Society of Iowa; Iowa’s Chapter of American Academy of Pediatrics; Iowa Departments of Education, Public Health, and Human Services; Iowa Medicaid Enterprise; First Five; Autism Diagnostic and Treatment Centers; policy makers; and community providers.

To view Iowa's State Grantee Profile, click here.

To learn more about Iowa's work, contact Peggy Swails at or (319) 353-6964.

Project Activities

Iowa's project activities focus on: 1) Improving the role of families in the Iowa ASD system of care; 2) Promoting the Regional Autism Assistance Program’s role in supporting and coordinating family-centered community based centers of services for children with ASD; and 3) Strengthening the statewide coalition working on ASD initiatives in Iowa.

Regional Autism Assistance ProgramIowa RAP Brochure.PNG

The Regional Autism Assistance Program (RAP) aims to connect children with ASD/DD and their families to services.

The RAP team provide services such as:

  • Coordinating care
  • Navigating families through the education system
  • Exploring insurance coverage and payment options
  • Communicating with diagnostic facilities and healthcare providers
  • Finding an advocacy and family support group
  • Connecting to ASD information

To view RAP's website and related resources, click here.

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Expert Panel

RAP convenes the Expert Panel to assist the Department of Human Services in developing the framework for the newly created Autism Support program.

To view the committee's meeting minutes and related resources, click here.

Other Resources

To access more of Iowa's resources through SPHARC's search engine, click here.