The AUCD is a membership organization that supports and promotes a national network of university-based interdisciplinary programs consisting of the University Centers for Excellence in Developmental Disabilities (UCEDD), Leadership Education in Neurodevelopmental Disabilities (LEND) Programs, and the Intellectual and Developmental Disability Research Centers (IDDRC). These programs serve and are located in every U.S. state and territory and are all part of universities or medical centers. They serve as a bridge between the university and the community, bringing together the resources of both to achieve meaningful change.
ABCD was launched by the Commonwealth Fund and is dedicated to strengthening the capacity of the health care system to support the early development of children from low-income families. As part of ABCD, the Commonwealth Fund awarded a grant to the for State Health Policy (NASHP) to help states improve the delivery of early childhood development services to children through their Medicaid programs.
The ADDM Network is a group of programs funded by the CDC to determine the prevalence of the Autism Spectrum Disorders (ASDs) in U.S. communities.
Created in 2004, is the ASA's online referral database.
Easter Seals has prepared a state-of-the-state report of autism services in the 50 states, the District of Columbia and Puerto Rico. The state profiles highlight the number of children with autism who have received the state’s special education services, state insurance coverage for autism if available, Medicaid services for specific individuals with autism, educational programs provided to students with autism or training that focused on autism, special education criteria, other state-led resources, and sponsors of autism legislation.
Health care settings can use this structured tool in quality improvement activities and to support development of the first key component of a medical home as defined by the American Academy of Pediatrics—“provision of family-centered care through developing a trusting partnership with families, respecting their diversity, and recognizing that they are the constant in a child’s life” (AAP, 2002). This tool can be used to increase family satisfaction with the care setting and to increase its standing in the community.
The Interagency Autism Coordinating Committee (IACC) coordinates all efforts within the Department of Health and Human Services (HHS) concerning autism spectrum disorder (ASD). Through its inclusion of both Federal and public members, the IACC helps to ensure that a wide range of ideas and perspectives are represented and discussed in a public forum.
The Centers for Disease Control and Prevention’s (CDC) National Center on Birth Defects and Developmental Disabilities (NCBDDD), in collaboration with a number of national partners, launched a public awareness campaign called “Learn the Signs. Act Early.” The campaign aims to educate parents about childhood development, including early warning signs of autism and other developmental disorders, and encourages developmental screening and intervention.
The Maternal and Child Health Bureau is a part of the Health Resources and Services Administration (HRSA). Visit the Combating Autism Web page for specific information about autism.
This knowledge path about autism spectrum disorders offers a selection of current, high-quality resources about ASD screening and diagnosis, treatment and intervention, communication, education, vocational challenges, and impact on family life. Separate sections identify resources that address early identification, early intervention and education, concerns about vaccines, environmental health research, and inappropriate use of seclusion and restraints. This knowledge path for health professionals, educators, researchers, policymakers, and families will be updated periodically.
The National Conference of State Legislatures' Autism Legislation Database provides information about autism legislation introduced in the 50 states and the District of Columbia from the 2008 legislative session to present. The database can be searched by state, topic, keyword, status, year, bill number, or primary sponsor. Topics include awareness, education, financing, health and human services, infrastructure, insurance, professional training, and screening. New legislation will be added to the database as it is introduced.
The National Medical Home Autism Initiative, founded as a cooperative agreement by the federal Maternal Child Health Bureau, is a national technical assistance, resource and advocacy project designed to promote methods that will improve the capacity of the medical home and early intervention community to identify, appropriately serve and integrate children with autism into their communities. The primary purpose of the project is to identify and demonstrate how principles of the medical home can be applied to achieve early identification and intervention for children with autism spectrum disorders.
A multi-university center that promotes the use of evidence-based practice for children and adolescents with autism spectrum disorders. The goals of the NPDC are to promote optimal development and learning of infants, children and youth with ASD and provide support to their families through the use of evidence-based practices, increase the number of highly qualified personnel serving children with ASD through sustainable technical assistance and professional development, and increase the capacity of states to implement evidence-based practices for early identification, intervention, education, professional development, and technical assistance.
The Organization for Autism Research (OAR) was created in December 2001–the product of the shared vision and unique life experiences of OAR’s seven founders. Led by these parents and grandparents of children and adults on the autism spectrum, OAR set out to use applied science to answer questions that parents, families, individuals with autism, teachers and caregivers confront daily. OAR’s programs revolve around funding new research and disseminating evidence-based information in a form that translates the technical into layman’s terms for the non-scientific consumer.
State Public Health Autism Resource Center (SPHARC) Flyer