Skip Navigation Links
Skip Navigation Links
CDC Act Early GrantsExpand CDC Act Early Grants
Learning ModulesExpand Learning Modules
Peer-to-Peer-ExchangeExpand Peer-to-Peer-Exchange
ResourcesExpand Resources
State Spotlights
Technical Assistance CallsExpand Technical Assistance Calls
Title V Early Childhood Data Integration ToolkitExpand Title V Early Childhood Data Integration Toolkit
RecentExpand Recent

 AMCHP Annual Conference

New item! 2019 Annual Conference

Autism Community of Learners workshop: Increasing Access to ASD/DD Diagnosis and Intervention Among Medically Underserved Children: Streamlining Evidence, Strengthening Families, and Empowering Self-Advocates

This workshop session, hosted by SPHARC, was held at the 2019 AMCHP Annual Conference in San Antonio, Texas. This workshop featured examples of strategies from the 4 current state Autism grantees, and their work to improve access to a coordinated, comprehensive state system of services that leads to early diagnosis and entry into services. Each state shared best practices in understanding how to streamline evidence, strengthen families, and empower self-advocates through an interactive panel and discussion. 

Presentation and discussion topics included:

  • Working Collaboratively Across Agencies to Create Positive Change for Children & Families (Delaware)
  • Meaningful Family Engagement: The Who, What, When, Where and Why and How of Success (Rhode Island)
  • Inclusion of Autistic Adult Perspectives: Moving towards Meaningful Partnership (Washington)
  • Quality Improvement and Evaluation: Wisconsin Care Integration Initiative (Wisconsin)

 2018 Annual Conference

Autism Town Hall: Partnering with Primary Care Pediatricians; Meaningful Inclusion; and Gender Differences

The "Autism Town Hall" event, hosted by SPHARC and ITAC, was held at the 2018 AMCHP Annual Conference in Arlington, VA. It provided a platform for current and former Autism CARES grantees, as well as those working at the state systems level and other community members, to dialogue with national partner organizations and each other about priorities and ideas for how to make progress toward a coordinated, comprehensive system of services for autistic individuals. The event was an opportunity to hear from groups working on ASD/DD issues and discuss ways to promote alignment with existing efforts. 

Presentation and discussion topics included:

  • Partnering with Primary Care Pediatricians: Identification and Diagnosis, Family Support, and Transitions of Care
  • Meaningful Inclusion of People on the Autism Spectrum in Multiple Settings
  • Gender Differences in Autism: Awareness Helps with Early Identification

Click here to access the recordings, slides, discussion handouts and more information from the Town Hall.

2017 AMCHP Conference

  • The National Standards for Systems of Care for Children and Youth with Special Health Care Needs: New Frontiers in Implementation for Title V and Partners: This skills-based training was an interactive session that 1) Familiarized participants with the National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN); 2) Showed existing assessment tools that participants can use to identify organizational strengths and areas for improvement based on Standard Domain; and 3) Provided a sneak peak of upcoming pilot assessment tools focused on partnership and systems alignment. 
    • Slide Presentation - Kate Taft, MPH, Associate Director, Child and Adolescent Health, AMCHP

  • National Title V CYSHCN Program Profile: Results, Analysis and Strategic Implications: This session shared the results of a national survey conducted by AMCHP of State Title V CYSHCN programs. Some results that were shared include the structure, location, role, related policies, strengths, and key collaborations of State Title V CYSHCN programs. The session also provided key updates on when the final report will be shared publicly. 
    • Slide presentation - Jen Farfalla, MPH, Senior Epidemiologist, AMCHP; Kate Taft, MPH, Associate Director, Child and Adolescent Health, AMCHP

  • Solving the Autism Puzzle for Your State: A Review of ASD/DD Planning & Implementation Activities from Four States: Massachusetts, New Hampshire, Texas and Tennessee provide participants with overviews of their HRSA grant activities as well as results and lessons learned from their projects. 
  • Iowa Regional Autism Assistance Program (RAP): Enhancing Effective Partnerships to Enhance Systems of Care While Building Sustainable Programs: This session highlights Iowa's work they accomplished during their HRSA grant period on building systems of care for children with ASD/DD. They described RAP's team roles, strategies and lessons learned to ensure sustainability beyond their funding period. 
    • Slide Presentation - Peggy Swails, MSW, LMSW, Program Manager & LEND Training Director; Rachell Swanson-Holm, BS, Family Navigation Coordinator and Act Early Ambassador 

2016 AMCHP Conference

2015 AMCHP Conference

  • Considering Culture in Autism Screening: This skills-based training session was an interactive, case-based training session about culturally competent screening, evaluation, and referral to intervention services for children with autism spectrum disorder (ASD)/developmental disabilities (DD). The session will focus primarily on the screening and identification needs of families of young children with ASD/DD from immigrant backgrounds.
    • Slide Presentation [PDF] - Elaine Gabovitch, MPA, Massachusetts Act Early Program, UMass Medical School/EK Shriver Center; and Roula Choueiri, MD, Division Chief, Developmental and Behavioral Pediatrics, UMass Medical School
    • Considering Culture Handouts [PDF]
  • Partnering with Early Childhood Educators to Promote Developmental Monitoring and Referral [PDF] - Stephan Viehweg, ACSW, LCSW, IMH-E(IV), Riley Child Development Center (IN); Deana Buck, MEd, Education and Early Intervention Partnership for People with Disabilities (VA); Gail Chodron, MA, Wisconsin LEND

2014 AMCHP Conference


2013 AMCHP Conference


2012 AMCHP Annual Conference


2011 AMCHP Annual Conference

Roles for State Title V Programs in Building Systems of Care for Children and Youth with ASD and DD

  • Bonnie Strickland, PhD (Moderator)
    Director, Division of Services for CSHCN, MCHB, HRSA, Rockville, MD
  • Georgia Winson, MS [Audio Slides and Presentation] [Slides]
    Chief Administrator, The Autism Program of Illinois, The Hope Institute for Children and Families, Springfield, IL
  • Holly Williams, RN, MSN & Harper Randall, MD [Audio Slides and Presentation] [Slides]
    Bureau Director, CSHCN, Utah Department of Health (UDOH), Salt Lake City, UT & Medical Director, UDOH, Salt Lake City, UT
  • Georgina Peacock, MD, MPH [Audio Slides and Presentation] [Slides]
    Pediatrician, NCBDDD, CDC, Atlanta, GA
  • Q&A Session [Transcript]

This workshop addressed roles for state Title V programs in building systems of care and address how programs at both the state and federal levels can work together to strengthen systems of care for children and youth with autism spectrum disorders and other developmental disabilities (ASD and DD). Members of the AMCHP State Public Health Autism Resource Center's Partnership Group shared strategies, examples and approaches to help states determine appropriate roles and approaches from the state Title V, lead autism program and federal perspectives. This session should be relevant to all Title V programs and the Family Voices membership as states struggle to determine their most effective and appropriate roles in building systems of care that can meet the needs of growing numbers of children and youth with ASD and DD.