AMCHP Annual Conference
2019 Annual Conference
Autism Community of Learners workshop: Increasing Access to ASD/DD Diagnosis and Intervention Among Medically Underserved Children: Streamlining Evidence, Strengthening Families, and Empowering Self-Advocates
This workshop session, hosted by SPHARC, was held at the 2019 AMCHP Annual Conference in San Antonio, Texas. This workshop featured examples of strategies from the 4 current state Autism
grantees, and their work to improve access to a coordinated, comprehensive
state system of services that leads to early diagnosis and entry into services.
Each state shared best practices in understanding how to streamline evidence,
strengthen families, and empower self-advocates through an interactive panel
Presentation and discussion topics included:
- Working Collaboratively Across Agencies to Create Positive Change for Children & Families (Delaware)
- Meaningful Family Engagement: The Who, What, When, Where and Why and How of Success (Rhode Island)
- Inclusion of Autistic Adult Perspectives: Moving towards Meaningful Partnership (Washington)
- Quality Improvement and Evaluation: Wisconsin Care Integration Initiative (Wisconsin)
2018 Annual Conference
Autism Town Hall: Partnering with Primary Care Pediatricians; Meaningful Inclusion; and Gender Differences
The "Autism Town Hall" event, hosted by SPHARC and ITAC, was held at the 2018 AMCHP Annual Conference in Arlington, VA. It provided a platform for current and former Autism CARES grantees, as well as those working at the state systems level and other community members, to dialogue with national partner organizations and each other about priorities and ideas for how to make progress toward a coordinated, comprehensive system of services for autistic individuals. The event was an opportunity to hear from groups working on ASD/DD issues and discuss ways to promote alignment with existing efforts.
Presentation and discussion topics included:
Partnering with Primary Care Pediatricians: Identification and Diagnosis, Family Support, and Transitions of Care
Meaningful Inclusion of People on the Autism Spectrum in Multiple Settings
Gender Differences in Autism: Awareness Helps with Early Identification
Click here to access the recordings, slides, discussion handouts and more information from the Town Hall.
2017 AMCHP Conference
The National Standards for Systems of Care for Children and Youth with Special Health Care Needs: New Frontiers in Implementation for Title V and Partners: This skills-based training was an interactive session that 1) Familiarized participants with the National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN); 2) Showed existing assessment tools that participants can use to identify organizational strengths and areas for improvement based on Standard Domain; and 3) Provided a sneak peak of upcoming pilot assessment tools focused on partnership and systems alignment.
Slide Presentation - Kate Taft, MPH, Associate Director, Child and Adolescent Health, AMCHP
National Title V CYSHCN Program Profile: Results, Analysis and Strategic Implications: This session shared the results of a national survey conducted by AMCHP of State Title V CYSHCN programs. Some results that were shared include the structure, location, role, related policies, strengths, and key collaborations of State Title V CYSHCN programs. The session also provided key updates on when the final report will be shared publicly.
Slide presentation - Jen Farfalla, MPH, Senior Epidemiologist, AMCHP; Kate Taft, MPH, Associate Director, Child and Adolescent Health, AMCHP
Solving the Autism Puzzle for Your State: A Review of ASD/DD Planning & Implementation Activities from Four States: Massachusetts, New Hampshire, Texas and Tennessee provide participants with overviews of their HRSA grant activities as well as results and lessons learned from their projects.
Iowa Regional Autism Assistance Program (RAP): Enhancing Effective Partnerships to Enhance Systems of Care While Building Sustainable Programs: This session highlights Iowa's work they accomplished during their HRSA grant period on building systems of care for children with ASD/DD. They described RAP's team roles, strategies and lessons learned to ensure sustainability beyond their funding period.
Slide Presentation - Peggy Swails, MSW, LMSW, Program Manager & LEND Training Director; Rachell Swanson-Holm, BS, Family Navigation Coordinator and Act Early Ambassador
2016 AMCHP Conference
Strategy to Action: Improving Developmental Screening and Access to Early Childhood Services: This skills-based training session was an interactive session designed to help participants develop action plans, strategies and strategy measures to improve rates of screening and early identification, and identify opportunities for cross-system collaboration to support access to services for children identified by screening. The session highlighted a variety of tools, including case studies, sample strategies and measures, organizational assessments based on the National CYSHCN Systems Standards, systems/partner mapping and action learning.
2015 AMCHP Conference
Considering Culture in Autism Screening: This skills-based training session was an interactive, case-based training session about culturally competent screening, evaluation, and referral to intervention services for children with autism spectrum disorder (ASD)/developmental disabilities (DD). The session will focus primarily on the screening and identification needs of families of young children with ASD/DD from immigrant backgrounds.
Slide Presentation [PDF]
- Elaine Gabovitch, MPA, Massachusetts Act Early Program, UMass Medical School/EK Shriver Center; and Roula Choueiri, MD, Division Chief, Developmental and Behavioral Pediatrics, UMass Medical School
Considering Culture Handouts [PDF]
Partnering with Early Childhood Educators to Promote Developmental Monitoring and Referral [PDF] - Stephan Viehweg, ACSW, LCSW, IMH-E(IV), Riley Child Development Center (IN); Deana Buck, MEd, Education and Early Intervention Partnership for People with Disabilities (VA); Gail Chodron, MA, Wisconsin LEND
2014 AMCHP Conference
Building Comprehensive and Culturally Competent Systems of Care for Children and Youth with Autism Spectrum Disorder: Challenges and Opportunities:
Massachusetts Slide Presentation- Amy Daniels, PhD, Autism Speaks; and Elaine Gabovitch, MPA, Massachusetts Act Early Program, UMass Medical School/EK Shriver Center
Washington Slide Presentation– Carol Miller, MPH, Washington State Department of Health; Rebecca Timmen, LAUNCH and ECCS Coordinator, Department of Health
Integrating the CDC “Learn the Signs. Act Early.” Campaign in MCH Programs in Indiana, Virginia, and Wisconsin to Improve Early Identification of Developmental Delays and Disabilities- Stephan Viehweg, ACSW, LCSW, IMH-E(IV), Riley Child Development Center (IN); Deana Buck, MEd, Education and Early Intervention Partnership for People with Disabilities (VA); Gail Chondron, MA, Wisconsin LEND
2013 AMCHP Conference
2012 AMCHP Annual Conference
2011 AMCHP Annual Conference
Roles for State Title V Programs in Building Systems of Care for Children and Youth with ASD and DD
Bonnie Strickland, PhD (Moderator)
Director, Division of Services for CSHCN, MCHB, HRSA, Rockville, MD
Holly Williams, RN, MSN & Harper Randall, MD [Audio Slides and Presentation] [Slides]
Bureau Director, CSHCN, Utah Department of Health (UDOH), Salt Lake City, UT & Medical Director, UDOH, Salt Lake City, UT
This workshop addressed roles for state Title V programs in building systems of care and address how programs at both the state and federal levels can work together to strengthen systems of care for children and youth with autism spectrum disorders and other developmental disabilities (ASD and DD). Members of the AMCHP State Public Health Autism Resource Center's Partnership Group shared strategies, examples and approaches to help states determine appropriate roles and approaches from the state Title V, lead autism program and federal perspectives. This session should be relevant to all Title V programs and the Family Voices membership as states struggle to determine their most effective and appropriate roles in building systems of care that can meet the needs of growing numbers of children and youth with ASD and DD.