Core Outcome 5: Families of children and youth with special health care needs will partner in decision-making at all levels, and will be satisfied with the services they receive.
Families play a critical role in helping to improve systems and services for ASD/DD, as well as broader MCH systems. Browse through the resources on this page to learn more about family professional partnerships and family engagement in ASD/DD systems of care.
Visit AMCHP's Family Engagement and Leadership pages to learn more about sustaining and diversifying family engagement in Title V MCH and CYSHCN Programs broadly.
Family Navigation Story Wall
What are the challenges, benefits and rewards of being a family navigator? Click on each picture to read short, first-hand accounts from navigators and to access a report with case studies.
The National Center for Family/Professional Partnerships works to reduce health care disparities of families of CYSHCN by making health care more family-centered through the development and support of family and youth leadership, particularly of those from diverse backgrounds, at the systems or policy-making level.
The National Center for Cultural Competence works to increase the capacity of health care and mental health care programs to design, implement, and evaluate culturally and linguistically competent service delivery systems to address growing diversity, persistent disparities, and to promote health and mental health equity.