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 National Standards for Systems of Care for CYSHCN

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In March 2014, AMCHP, with support from the Lucile Packard Foundation for Children’s Health, released a groundbreaking set of standards designed to help communities, states, and the nation build and improve systems of care for Children and Youth with Special Health Care Needs (CYSHCN). The standards were derived from a comprehensive review of the literature, more than 30 key informant interviews, case studies of standards currently in use within selected sites, and input and guidance from a national work group. 

The National Standards outline core components for health providers and plans, as well as guidelines for state systems of care serving CYSHCN. They are built on the expectation that children, youth, and families of CYSHCN are active, core partners in decision-making at all levels of health care and health services, and that care is based on the best information and evidence available. They are intended for use or adaptation by a wide range of stakeholders at the national, state, and local level.  

In 2017, Version 2.0 of the National Standards for Systems of Care for Children and Youth with Special Health Care Needs was released, which builds on the critical domains, elements, and standards of the original work while streamlining content for easier use by states and stakeholders. 

Click on the tiles below to access the National Standards and related tools, resources, and implementation examples. 

Access the Standardsaccess tile
Access the full versions of the National Standards, a White Paper, and mobile-friendly site.
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Tools and ResourcesTools tile
Includes a toolkit, assessment and implementation tools, tip sheets, fact sheets, and more!
Tools and Resources pageDialog
Learning ModulesModule Tile
A 3-module series on using quality measures, data, and National Standards to improve systems of care for CYSHCN
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Standards in Action: State ExamplesAction tile
Case studies, presentations, and successes from Action Learning Collaboratives.
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Staff Contacts

KateT.JPGKate Taft
Associate Director; Child & Adolescent Health
(202) 266-3056
Paige Bussanich2.jpgPaige Bussanich
Senior Program Manager, CYSHCN
(202) 266-3042