Children & Youth With Special Health Care Needs


What's New?

history.jpgCheck out AMCHP's interactive, self-paced learning module focused on the History of Title V Children and Youth with Special Health Care Needs (CYSHCN) Programs! 
*Now with closed captioning* 

This tool was developed in response to a growing need to understand the challenging context that has led to the current structure and policies around Title V CYSHCN programs. The module includes research-based content, resources, and perspectives from key experts from the Maternal and Child Health field. This tool may also be used as a refresher for Title V staff and other health professionals to describe progress in state Title V CYSHCN activities and how these programs are moving forward.

Whether you are a Title V leader, health professional, student, or other key stakeholder, this module is a great tool for you! To access the module, click here or click on the picture above. If you experience any issues accessing the module, please email Paige Bussanich at

​Standards 2.0 is Here! Click here to  access it and other new resources.

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Check out our new National Standards interactive website!

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Who are Title V CYSHCN Programs and what do they do? Find out more in our recent profile.

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In the United States, nearly 14.2 million children have special health care needs. Children and youth with special health care needs (CYSHCN) are a diverse group of children, ranging from children with chronic conditions to those with more medically complex health issues, to children with behavioral or emotional conditions. The Maternal and Child Health Bureau defines CYSHCN as children who have or are at increased risk for a chronic physical, developmental, behavioral or emotional condition and who also require health and related services of a type or amount beyond that required by children generally. 

As a national advocate for family health, AMCHP ensures these children receive high quality, family-centered, integrated health services by partnering with national and state agencies and organizations, such as state Title V CYSHCN Programs. State Title V CYSHCN programs have decades of experience in creating and sustaining systems of care for CYSHCN and their families. State CYSHCN programs ensure family-centered, community-based, coordinated care for children with chronic conditions and disabilities. 

To access an overview of Models of Care for CYSHCN, click here.

To learn about Health Reform related to CYSHCN, click here.

Focus Areas

The CYSHCN program at AMCHP covers a range of focus areas through our partnerships with state and national organizations.

To learn more about each focus area, click on the subjects below or click here.

​                                           SPHARC Button Spelled Out.PNG CYSHCN-LICD.PNG CYSHCN-Family Involvement.PNG

        ​                                                     CYSHCN-Early Childhood.PNG CYSHCN-Birth Defects.PNG CYSHCN-Newborn Screening.PNG


Staff Contacts

Picture of AMCHP Staff Kate Taft​​Kate Taft
Associate Director; Child & Adolescent Health
(202) 266-3056
CoriFloyd.jpgPaige Bussanich
Senior Program Manager, CYSHCN
(202) 266-3042