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 Children & Youth With Special Health Care Needs


What's New?

​Standards 2.0 is Here! Click here to  access it and other new resources.

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Check out our new National Standards interactive website!

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Who are Title V CYSHCN Programs and what do they do? Find out more in our recent profile.

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In the United States, nearly 14.2 million children have special health care needs. Children and youth with special health care needs (CYSHCN) are a diverse group of children, ranging from children with chronic conditions to those with more medically complex health issues, to children with behavioral or emotional conditions. The Maternal and Child Health Bureau defines CYSHCN as children who have or are at increased risk for a chronic physical, developmental, behavioral or emotional condition and who also require health and related services of a type or amount beyond that required by children generally. 

As a national advocate for family health, AMCHP ensures these children receive high quality, family-centered, integrated health services by partnering with national and state agencies and organizations, such as state Title V CYSHCN Programs. State Title V CYSHCN programs have decades of experience in creating and sustaining systems of care for CYSHCN and their families. State CYSHCN programs ensure family-centered, community-based, coordinated care for children with chronic conditions and disabilities. 

To access an overview of Models of Care for CYSHCN, click here.

To learn about Health Reform related to CYSHCN, click here.

Focus Areas

The CYSHCN program at AMCHP covers a range of focus areas through our partnerships with state and national organizations.

To learn more about each focus area, click on the subjects below or click here.

​                                           SPHARC Button Spelled Out.PNG CYSHCN-LICD.PNG CYSHCN-Family Involvement.PNG

        ​                                                     CYSHCN-Early Childhood.PNG CYSHCN-Birth Defects.PNG CYSHCN-Newborn Screening.PNG


Staff Contacts

Picture of AMCHP Staff Kate Taft​​Kate Taft
Associate Director; Child & Adolescent Health
(202) 266-3056
CoriFloyd.jpgPaige Bussanich
Senior Program Manager, CYSHCN
(202) 266-3042
CoriFloyd.jpg Cori Floyd
Program Analyst, CYSHCN
(202) 266-3046