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 Children & Youth With Special Health Care Needs



In the United States, about 11.2 million children have special health care needs. Children and youth with special health care needs (CYSHCN) are a diverse group of children, ranging from children with chronic conditions to those with more medically complex health issues, to children with behavioral or emotional conditions. The Maternal and Child Health Bureau definies CYSHCN as children birth to age 21 who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children generally.

As a national advocate for family health, AMCHP ensures these children receive high quality, family-centered, integrated health services by partnering with national and state agencies and organizations, such as state Title V CYSHCN Programs.

State Title V CYSHCN programs have decades of experience in creating and sustaininCYSHCN Fact Sheet.PNGg systems of care for CYSHCN and their families. State CYSHCN programs ensure family-centered, community-based, coordinated care for children with chronic conditions and disabilities.

With support from several sponsors, including the Maternal and Child Health Bureau (MCHB) and the Lucile Packard Foundation for Children's Health, AMCHP assists families and state Title V CYSHCN programs with the following:

  • Policy and legislative analysis
  • Research
  • Coordination of national meetings
  • Publications

To access a fact sheet on general CYSHCN information, click here.

To access an overview of Models of Care for CYSHCN, click here.

To learn about Health Reform related to CYSHCN, click here.

Focus Areas

The CYSHCN program at AMCHP covers a range of focus areas through our partnerships with state and national organizations.

To learn more about each focus area, click on the subjects below or click here.

​                                                       CYSHCN-Early Childhood.PNGSPHARC Button Spelled Out.PNGCYSHCN-LICD.PNG
                                                       CYSHCN-Family Involvement.PNGCYSHCN-Birth Defects.PNGCYSHCN-Newborn Screening.PNG


Staff Contacts

Treeby_Brown.jpgTreeby Brown
Associate Director, Child and Adolescent Health
(202) 266-3053
Sarah Beth.PNGSarah Beth McLellan Senior Program Manager; CYSHCN
(202) 266-5255  
CoriFloyd.jpgCori Floyd
Program Associate, Child and Adolescent Health
(202) 266-3046