AMCHP's Position | Issue Overview | Title V's Role | Pending Legislation | AMCHP's Voice
AMCHP supports implementation funding for the Combating Autism Act of 2006 and the active involvement of state Title V programs to promote screening and strengthen efforts to assure medical homes for all children and youth with special health care needs.
Title V of the Social Security Act through OBRA 89 requires that Title V programs to facilitate the development of community-based systems of services for children and youth with special health care needs (CYSHCN) and their families. The President’s New Freedom Initiative further affirms this role. AMCHP supports adequate funding for and designation of state Title V programs as the lead agency to coordinate and oversee the activities as outlined in this Act.
Recognizing that a medical home provides continuity of care and fosters relationships to best meet both the child’s and family’s needs, AMCHP supports strategies designed to “spread” the medical home initiative. For more information, see the health care financing webpage.
Autism. Combating Autism Act of 2006 was signed into law on Dec. 19, 2006. Read a summary of the bill. The purpose of the legislation is to amend the Public Health Service Act to combat autism through increased screening, intervention and education. The legislation authorizes $945 million over five years for autism research, screening, treatment and education.
This legislation provides for the Secretary of Health and Human Services to have the governor of each state designate a public agency as the lead agency to coordinate activities at the state level.
Autism Education, Early Detection and Intervention requires that autism education, early detection and intervention information will be provided to families through federal programs including the Head Start, Early Start, Healthy Start, Medicaid, SCHIP and Title V.
Title V’s Role
Under the Combating Autism Act, the Secretary of Health and Human Services, in coordination with activities conducted under Title V will expand existing interdisciplinary training opportunities, or opportunities to diagnose or rule out individuals with autism spectrum disorder.
Facilitating family-centered community based coordinated care for CYSHCN is one of the key responsibilities of state Title V programs.