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 Publications & Resources

General Maternal & Child Health

Project Leadership: Effecting Change, One Parent at a Time
Children with special health care needs and their families rely on a complex web of services, systems and programs, yet their voices often go unheard when policies are being developed. With funding from the Lucile Packard Foundation for Children's Health, Family Voices of California has developed Project Leadership, a training curriculum aimed at increasing the capacity of families to engage in public policy advocacy. The curriculum is designed to accommodate the demanding schedules of families, and also provides ongoing mentoring and support. In the program's first two years, 79 family members around the state completed the training and began participating in committees and planning bodies; testifying at state and local hearings; and telling their stories through the media. To view the publications, click here.

Child & Adolescent Health

Expanding Access to Health Care Services and Work-Based Experiences for Youth with Chronic Health Conditions and Disabilities
In celebration of the ADA, the Department of Labor Office of Disability Employment Policy and the Maternal and Child Health Bureau (MCHB) released a Transition QuickGuide, which aims to help youth and young adults in planning and managing their health care and career needs. To access the Transition QuickGuide, please click here.

Realizing the Promise of Telehealth for Children with Special Health Care Needs
Families of children with special health care needs are painfully acquainted with the frequent difficulty of gaining access to specialty care, especially in rural areas. One emerging solution is the use of telehealth technology to allow for remote appointments. Though telehealth has proven to be an effective tool, California health care providers and families are not taking full advantage of its possibilities. A new report highlights telehealth successes for children with special needs, the barriers to its use, and possible policy solutions. To view the full report, click here.