Skip Navigation Links
October 2021 - 2nd EditionExpand October 2021 - 2nd Edition
October 2021Expand October 2021
July 2021Expand July 2021
May 2021Expand May 2021
April 2021Expand April 2021
January 2021Expand January 2021
November 2020Expand November 2020
July/August 2020Expand July/August 2020
May/June 2020Expand May/June 2020
March/April 2020Expand March/April 2020
January/February 2020Expand January/February 2020
September/October 2019Expand September/October 2019
July/August 2019Expand July/August 2019
May/June 2019Expand May/June 2019
March/April 2019Expand March/April 2019
January/February 2019Expand January/February 2019
November/December 2018Expand November/December 2018
September/October 2018Expand September/October 2018
July/August 2018Expand July/August 2018
May/June 2018Expand May/June 2018
March/April 2018Expand March/April 2018
January/February 2018Expand January/February 2018
November/December 2017Expand November/December 2017
September/October 2017Expand September/October 2017
July/August 2017Expand July/August 2017
May/June 2017Expand May/June 2017
March/April 2017Expand March/April 2017
January/February 2017Expand January/February 2017
November/December 2016Expand November/December 2016
September/October 2016Expand September/October 2016
July/August 2016Expand July/August 2016
May/June 2016Expand May/June 2016
March/April 2016Expand March/April 2016
January/February 2016Expand January/February 2016
November/December 2015Expand November/December 2015
September/October 2015Expand September/October 2015
July/August 2015Expand July/August 2015
May/June 2015Expand May/June 2015
March/April 2015Expand March/April 2015
January/February 2015Expand January/February 2015
ArchiveExpand Archive
Special Edition - EPRExpand Special Edition - EPR
Special Edition: Title V Technical Assistance MeetingExpand Special Edition: Title V Technical Assistance Meeting
Title V Technical Assistance Meeting

 Title V Data Integration Initiatives

​Bringing Together Diverse Leaders in Public Health 

Paige Bussanich
Senior Program Manager, CYSHCN

Elizabeth Collins
Title V CYSHCN Director, Special Medical Services
New Hampshire Department of Health and Human Services

Colleen Ehatt
Public Health Program Consultant II; Children and Youth Branch Data Manager
North Carolina Division of Public Health, Department of Health and Human Services

Deepa Srinivasavarada
CDC's Act Early Ambassador to New Jersey; Family & Professional Partnership Strategist
Statewide Parent Advocacy Network (SPAN)

abstract-1231889_640.jpgStates have many early childhood programs, services, and data systems. Systems that bring together these multiple data sources through collection, integration, maintenance, storage, and reporting are called Early Childhood Integrated Data Systems (ECIDS). These powerful systems typically include data related to the individual child, the child's family, the classroom, the program/providers, and other services that provide comprehensive care and education for young children. To date, states have primarily integrated education data into ECIDS, including data from The Individual with Disabilities Education Act (IDEA) Part C and Part B 619 Early Intervention, Head Start/Early Head Start, state preschool, and childcare data.

While the data are useful, they do not provide a holistic picture of children, families, or the comprehensive early childhood system.

This was brought to AMCHP's State Public Health Autism Resource Center (SPHARC) as a technical assistance need. Over the course of five months, AMCHP convened a workgroup of Title V stakeholders to work on a toolkit to help address this need of data integration. Below you will find reflections from three diverse stakeholders from this workgroup: a public health data manager, a Title V CYSHCN director, and a parent leader. We hope the experiences of your fellow Title V leaders inspire you to think about the need for data integration in your program and ways to engage diverse leaders in cross-cutting initiatives.

Reflections from a Public Health Data Manager, Colleen Ehatt — North Carolina

As a Child and Youth Branch data manager, I found it great to work with other "data people" on a tool that can be used throughout the state to streamline data collection and foster collaborations. The examples or case studies in the toolkit are applicable to what we do in public health on a regular basis, so it was easy to understand the goals of the toolkit.

From my experience, it is challenging to work with people who have various knowledge sets about new software/programs, because new programs can be intimidating and sometimes people do not clearly understand their benefits. It is also challenging to work with others who do not have as much experience with data collection/reporting – for instance, people may not understand why data needs to be collected in a certain way, or may not think about what outcomes they want from data before creating surveys or collecting the data, which can lead to lacking enough data to do what you aimed to do.

Reflections from a Title V CYSHCN Director, Elizabeth Collins — New Hampshire

As a CYSHCN director, data is a critical resource for my role. The potential benefit of ECIDS is clear and the value of developing a toolkit for incorporating Title V in ECIDS seemed obvious. My only hesitation was that I work in a state that does not have an ECIDS. However, I was welcomed to the workgroup, and my questions and feedback were positively received.

The workgroup members came from varied roles, and it was very effective to understand and review the perspectives offered. The workgroup was designed to carry out its mission over a reasonable time frame, the facilitator was very knowledgeable about ECIDS, and the online meetings were well-organized. The final toolkit benefitted greatly from the variety of workgroup participants. The toolkit will be very useful for CYSHCN who are partnering with their ECIDS, as well as for others like me in future efforts to create an ECIDS. 

Reflections from a Parent Leader, Deepa Srinivasavarada — New Jersey

As a family leader and the "Learn the Signs. Act Early." Ambassador to New Jersey, I know and value the importance of aligning resources and the need for collaboration across maternal and child health programs to deliver services that are coordinated, comprehensive, family-centered, and culturally competent. Hence, my leadership project as a Family Fellow for the N.J. LEND program focused on completing an environmental scan of the early childhood services/programs in New Jersey and identifying potential action areas, including data integration, to improve program management, and to maximize resource investments.

As I was gathering information for my project, I was thrilled to find out about AMCHP's efforts to create an Early Childhood Data Integration Toolkit. I contacted AMCHP staff and became a member of the workgroup. It was a wonderful experience participating in the workgroup along with some of my peers and other professionals from different backgrounds. It was very interesting to see how everyone could share their perspectives and ideas, and how they were all incorporated into the toolkit. I am so glad to have been part of this workgroup and look forward to sharing this great resource!


Through data integration, public health providers and early care and education providers are moving from compliance-driven cultures to improvement-driven cultures and coordinating services to ensure optimal health outcomes for children and families.

ECIDS, inclusive of public health data, have both short- and long-term benefits to public health programs. For example, integration not only leads to better health promotion, coordination of needed services, and earlier identification of developmental delays, but also to better planning, prevention education, and policy development, thus laying the foundation for future healthy development and school readiness. Some states integrating public health data into ECIDS can leverage efforts toward seamless care coordination, family support networking, developmental monitoring, streamlining eligibility determination, and facilitating referrals. These linkages bring together often isolated community-based programs and services by increasing communication and linking children and families to needed resources and services within the early childhood system.