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Title V Technical Assistance Meeting

 Resources

Agency for Healthcare Research and Quality (AHRQ): Evidence-based information on health care outcomes; quality; and cost, use, and access. Links to evidence reports and research findings about maternal health and pregnancy.

American College of Obstetrics and Gynecologists (ACOG): Information and materials about preconception and pregnancy for health professionals. Topics include health care for underserved women; perinatal HIV; maternal mortality; diabetes and pregnancy; tobacco, alcohol, and substance abuse; and women with disabilities. Note: Some resources on the website are accessible to members only. Web accessible resources include:

  • Immunization for Women: Updates and advisories on immunizations for adult and adolescent women, including those who are pregnant and breastfeeding. Includes information on seasonal flu and other vaccine-preventable diseases, immunization safety fact sheets, recommended immunization schedules, and practice-management guidelines.

American Journal of Obstetrics and Gynecology: This online resource presents the latest diagnostic procedures, leading-edge research and expert commentary in maternal-fetal medicine, reproductive endocrinology and infertility and gynecologic oncology as well as general obstetrics and gynecology.

Annie E. Casey Foundation KIDS COUNT Indicator Brief: This brief addresses disparities in infant mortality and describes strategies for reducing the infant mortality rate, providing pre-pregnancy education and counseling to all women and men, ensuring timely prenatal care for all women and expanding access to medical care for infants in the first month of life.

Association of Maternal & Child Health Programs (AMCHP): AMCHP is a national resource, partner and advocate for state public health leaders and others working to improve the health of women, children, youth and families, including those with special health care needs. AMCHP supports state maternal and child health programs and provides national leadership on issues affecting women and children. AMCHP's Women's and Infant Health Team carries out this mission in a number of ways and works to improve the health of women and infants through increased capacity of Title V MCH programs and coordination between stakeholders.

Association of SIDS and Infant Mortality Programs (ASIP): ASIP provides national leadership and support for state and local infant mortality programs, professionals and families. ASIP works to reduce the risk of sudden infant death while ensuring high quality bereavement services for families.

Association of State and Territorial Health Officials (ASTHO): MCH program: Addresses issues affecting families, women of reproductive age, infants, children and adolescents, including those with special healthcare needs. The ASTHO MCH program aims to increase state capacity to develop and implement policies and programs that respond to challenges and effectively promote state MCH.

  • Healthy Babies Project: The goal of the Healthy babies Project is to improve birth outcomes and reduce infant mortality and prematurity in the United States by working with state partners on health and community system changes, creating a unified message that builds on the best practices from around the nation and the efforts from Regions IV and VI, and developing clear measurements to evaluate targeted outreach, progress and return on investment.

Association of Women's Health, Obstetric and Neonatal Nurses (AWHONN): Works to improve and promote the health of women and newborns and to strengthen the nursing profession through the delivery of superior advocacy, research, education and other professional and clinical resources to nurses/other health care professionals.

Before, Between, and Beyond Pregnancy: The National Preconception Curriculum and Resources Guide for Clinicians: Continuing education modules, descriptions of state plans and programs for preconception and interconception care, news, key articles and guidance for specific high-risk conditions, and practice supports for physicians, nurse midwives, nurse practitioners, and physicians' assistants.

Centers for Disease Control and Prevention (CDC): Offers resources and initiatives aimed at reducing infant mortality and pregnancy loss that include:

CityMatCH: Tools and resources for implementing initiatives to support the improvement of local perinatal HIV systems, mobilize urban communities to reduce infant mortality and pregnancy loss, and reduce racial inequities in infant mortality in urban communities.

Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD): Contains research and grant information, publications and other resources for health professionals, researchers, and families about pregnancy and infant and child health topics, including pregnancy loss, birth defects, prematurity, and infant pregnancy loss, birth defects, prematurity, and infant mortality. 

  • Safe to Sleep: Public Education Campaign provides information about SIDS prevention, highlight risk factors, and provide tips on creating safe sleeping environments for infants.
  • Safe Sleep for Your Baby is a brochure that serves as an effort to educate families and caregivers about reducing the risk of Sudden Infant Death Syndrome and other sleep related causes of infant death.

Infant Mortality Network: The mission of the Infant Mortality Network is to improve pregnancy outcomes and reduce infant mortality through community collaboration. This resource provides mothers and professionals with tools for preconception nutrition, infant safety and more.

Lucile Packard Foundation for Children's Health: The mission of the Lucile Packard Foundation for Children's Health is to elevate the priority of children's health and increase the quality and accessibility of children's health care through leadership and direct investment, so that all children in the communities they serve are able to reach their maximum health potential.

March of Dimes (MOD): Contains resources for health professionals and expectant and new parents in English and Spanish about preconception and prenatal care, birth defects, pregnancy loss, prematurity, bereavement, and how to get involved in improving infant health by reducing the incidence of birth defects and infant mortality. MOD offers perinatal statistics (including infant mortality rates), continuing-education modules, medical reference information, and video and audio resources.

Maternal and Child Health Bureau (MCHB): Information about MCHB projects and initiatives including Healthy Start, a program to address factors contributing to infant mortality, low birth weight, and other adverse perinatal outcomes in high-risk populations, and the Maternal, Infant, and Early Childhood Home Visiting (MIECHV) Program, a federal, state, and community collaboration to improve health and development outcomes for children who are at risk through evidence-based home-visiting programs.

MCH Navigator: a learning portal for maternal and child health professionals, students, and others working to improve the health and well-being of women, children, and families.

National Center for Child Death Review: Describes the child death review process for infants, children and adolescents from birth through age 18, offers tools for child death review teams, provides state program information and presents child mortality data by state.

National Center for Cultural Competence (NCCC): Hosts information about the National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Project, which is part of a national consortium of four centers supported by MCHB to address infant mortality and pregnancy loss. Provides technical assistance and develops resources on cultural and linguistic competence to help programs effectively address racial and ethnic disparities in perinatal, infant and child mortality and pregnancy loss.

National Center for Education in Maternal and Child Health (NCEMCH) Infant Mortality and Pregnancy Loss Knowledge Path: This knowledge path, compiled by the NCEMCH at Georgetown University, offers a selection of recent, high-quality resources that analyze data, report on research aimed at identifying causes and promising intervention strategies, and describe risk-reduction efforts as well as bereavement-support programs.

National Fetal and Infant Mortality Review Program (NFIMR): Contains resources for implementing the fetal and infant mortality review (FIMR) method, including a directory of state and community FIMR projects, program descriptions, data-abstraction forms, sample laws to implement and safeguard FIMR proceedings and an online discussion group. NFIMR is a collaborative effort between the ACOG and MCHB.

National Healthy Mothers Healthy Babies Coalition (NMHB): Is a recognized leader and resource in maternal and child health, reaching an estimated 10 million health care professionals, parents, and policymakers through its membership of more than 100 local, state and national organizations.

National Healthy Start Association (NHSA): Describes the Healthy Start program and provides general information about infant mortality, low-birth-weight infants, and racial disparities in perinatal outcomes. Includes a directory of Healthy Start programs nationwide and a newsletter. Funded by MCHB, Healthy Start provides community-based, culturally competent, family-centered, comprehensive perinatal health services to women, infants and their families in communities with very high rates of infant mortality. 

National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Resource Center: Provides up-to-date information on the prevention of pregnancy loss, SIDS and sudden unexpected infant and child death; and on bereavement support for families facing losses. Information on child care and SIDS, first responders, and a safe sleep environment is included, as are a training toolkit, statistics, and multimedia resources.

Preconception Health Cafe: This online course provides an overview on the importance of preconception health, with specific focus on the first six of the CDC 10 Recommendations to Improve Preconception Health and Healthcare. These recommendations include individual responsibility across the lifespan, consumer awareness, preventive visits, interventions for identified risks, interconception care and pre-pregnancy checkup.

Reducing Infant Mortality: This film advocates for a health care system in which it will be standard procedure for mothers and babies to thrive and not merely survive through birth and early life by encouraging policy makers to consider a system that holds prevention as a high priority. 

Strong Start for Mothers and Newborns: Information about this initiative to reduce the risk of significant complications and long-term health problems for pregnant women and infants. Components include a public-private partnership to reduce early elective deliveries and a funding opportunity for testing new approaches to prenatal care. Strong Start is a joint effort between the Centers for Medicare and Medicaid Services (CMS), the Health Resources and Services Administration (HRSA), the Administration for Children and Families (ACF), and organizations devoted to the health of mothers and newborns.

Text4baby: Is the first free health text messaging service in the United States.Text4baby supports moms by providing accurate, text-length health information and resources in a format that is personal and timely, using a channel she knows and uses.

University of North Carolina at Chapel Hill Center for Maternal and Infant Health: Preconception and pregnancy research and program information, algorithms for the management of high-risk pregnancies, screening protocols and policies, and patient-education fact sheets in English and Spanish on pregnancy topics, genetics, and serious pregnancy and fetal conditions.

U.S. Department of Health and Human Services: The Department of Health and Human Services protects the health of all Americans and provides essential human services.

  • Child Health USA: Infant Mortality provides in-depth data and statistics about the causes of infant mortality in the United States.
  • Collaborative Improvement & Innovation Network to Reduce Infant Mortality is a public-private partnership to reduce infant mortality and improve birth outcomes.
  • The new Healthier Pregnancy website offers free continuing education opportunities, tools, and resources for pre and perinatal health care providers to implement efficient and effective, screening, intervention, and referral practices for these Affordable Care Act-covered preventive services.
  • HHS Advisory Committee on Infant Mortality: The committee represents a public and private partnership at the highest level to provide guidance and focus attention on policies and resources required to address and reduce infant mortality. The committee also provides advice on how to best coordinate federal, state, local and private programs designed to deal with the health and social problems impacting infant mortality.
  • Office of Minority Health: The Office of Minority Health is dedicated to improving the health of racial and ethnic minority populations through the development of health policies and programs that will help eliminate health disparities.
    • A Healthy Baby Begins with You. Information about this national campaign to raise awareness about infant mortality with an emphasis on the African-American community. Includes campaign materials and infant mortality disparities fact sheets.
    • Office of Minority Health (OMH) Preconception Peer Educators Program (PPE): As part of the OMH A Healthy Baby Begins with You national campaign, PPE works with the college age population, enlisting college students to serve as peer educators on college campuses and in the community, to help disseminate essential preconception health messages.