American College of Obstetrics and Gynecologists (ACOG): Is the leading authority on women’s health.
American Journal of Obstetrics and Gynecology: This online resource presents the latest diagnostic procedures, leading-edge research and expert commentary in maternal-fetal medicine, reproductive endocrinology and infertility and gynecologic oncology as well as general obstetrics and gynecology.
American Pregnancy Association: The American Pregnancy Association is a national health organization committed to promoting reproductive and pregnancy wellness through education, support, advocacy, and community awareness. This online resource offers tools and patient education materials for women and families before, during and after pregnancy as well as a toll-free helpline.
Annie E. Casey Foundation KIDS COUNT Indicator Brief: This brief addresses disparities in infant mortality and describes strategies for reducing the infant mortality rate, providing pre-pregnancy education and counseling to all women and men, ensuring timely prenatal care for all women and expanding access to medical care for infants in the first month of life.
APHA Health in All Polices Guide: This guide for all state and local governments encourages health priorities in all policies because where we live, work and play have a significant impact on our health. Access this resource to learn how to improve health and safety by incorporating health considerations into decision-making across all sectors and policy areas.
Association of Maternal & Child Health Programs (AMCHP): AMCHP is a national resource, partner and advocate for state public health leaders and others working to improve the health of women, children, youth and families, including those with special health care needs. AMCHP supports state maternal and child health programs and provides national leadership on issues affecting women and children. AMCHP’s Women’s and Infant Health Team carries out this mission in a number of ways and works to improve the health of women and infants through increased capacity of Title V MCH programs and coordination between stakeholders.
Association of SIDS and Infant Mortality Programs (ASIP): ASIP provides national leadership and support for state and local infant mortality programs, professionals and families. ASIP works to reduce the risk of sudden infant death while ensuring high quality bereavement services for families.
Association of State and Territorial Health Officials (ASTHO): MCH program: Addresses issues affecting families, women of reproductive age, infants, children and adolescents, including those with special healthcare needs. The ASTHO MCH program aims to increase state capacity to develop and implement policies and programs that respond to challenges and effectively promote state MCH.
- Healthy Babies Project: The goal of the Healthy babies Project is to improve birth outcomes and reduce infant mortality and prematurity in the United States by working with state partners on health and community system changes, creating a unified message that builds on the best practices from around the nation and the efforts from Regions IV and VI, and developing clear measurements to evaluate targeted outreach, progress and return on investment.
Association of Women’s Health, Obstetric and Neonatal Nurses (AWHONN): Works to improve and promote the health of women and newborns and to strengthen the nursing profession through the delivery of superior advocacy, research, education and other professional and clinical resources to nurses/other health care professionals.
Centers for Disease Control and Prevention (CDC): Offers resources and initiatives aimed at reducing infant mortality and pregnancy loss that include:
CityMatCH: Contains tools and resources for implementing the Perinatal Periods of Risk (PPOR) approach for mobilizing communities to reduce feto-infant mortality in U.S. cities.
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD): Contains research and grant information, publications and other resources for health professionals, researchers, and families about pregnancy and infant and child health topics, including pregnancy loss, birth defects, prematurity, and infant pregnancy loss, birth defects, prematurity, and infant mortality.
First Candle: First Candle is dedicated to safe pregnancies and the survival of babies through the first years of life. Current priorities are to eliminate Stillbirth, Sudden Infant Death Syndrome (SIDS) and other Sudden Unexpected Infant Deaths (SUID) with programs of research, education and advocacy. This resource also provide compassionate grief support to all those affected by the death of a baby through their crisis hotline.
Health People 2020: The objectives of the Maternal, Infant, and Child Health topic area of Healthy People 2020 address a wide range of conditions, health behaviors and health systems indicators that affect the health, wellness and quality of life of women, children, and families.
Infant Mortality Network: The mission of the Infant Mortality Network is to improve pregnancy outcomes and reduce infant mortality through community collaboration. This resource provides mothers and professionals with tools for preconception nutrition, infant safety and more.
Lucile Packard Foundation for Children's Health: The mission of the Lucile Packard Foundation for Children's Health is to elevate the priority of children's health and increase the quality and accessibility of children's health care through leadership and direct investment, so that all children in the communities they serve are able to reach their maximum health potential.
March of Dimes (MOD): Contains resources for health professionals and expectant and new parents in English and Spanish about preconception and prenatal care, birth defects, pregnancy loss, prematurity, bereavement, and how to get involved in improving infant health by reducing the incidence of birth defects and infant mortality. MOD offers perinatal statistics (including infant mortality rates), continuing-education modules, medical reference information, and video and audio resources.
Maternal and Child Health Bureau (MCHB): Leads projects and initiatives on behalf of American women, infants, children, adolescents and their families. Initiatives include Healthy Start, a program to address factors contributing to infant mortality, low birth weight, and other adverse perinatal outcomes in high-risk populations.
MCH Library Infant Mortality and Pregnancy Loss Knowledge Path: This knowledge path, compiled by the MCH Library at Georgetown University, offers a selection of recent, high-quality resources that analyze data, report on research aimed at identifying causes and promising intervention strategies, and describe risk-reduction efforts as well as bereavement-support programs.
MCH Navigator – a learning portal for maternal and child health professionals, students, and others working to improve the health and well-being of women, children, and families.
Perinatal Periods of Risk: Using Data and Community Involvement to Prevent Infant Mortality –
This archived webinar begins by providing a general understanding of the Perinatal Periods of Risk (PPOR approach, including its purpose, expected outcomes, analytic methods and resources for use. Participants learn how to use this framework to prioritize intervention efforts and examine risk factors related to infant and fetal death. Presenters also address Fetal Infant Mortality Review (FIMR) and how it can work with PPOR. The session further explains the role of community stakeholders, and what communities need in order to use PPOR successfully.
National Center for Child Death Review: Describes the child death review process for infants, children and adolescents from birth through age 18, offers tools for child death review teams, provides state program information and presents child mortality data by state.
National Center for Cultural Competence (NCCC): Hosts information about the National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Project, which is part of a national consortium of four centers supported by MCHB to address infant mortality and pregnancy loss. Provides technical assistance and develops resources on cultural and linguistic competence to help programs effectively address racial and ethnic disparities in perinatal, infant and child mortality and pregnancy loss.
National Fetal and Infant Mortality Review Program (NFIMR): Contains resources for implementing the fetal and infant mortality review (FIMR) method, including a directory of state and community FIMR projects, program descriptions, data-abstraction forms, sample laws to implement and safeguard FIMR proceedings and an online discussion group. NFIMR is a collaborative effort between the ACOG and MCHB.
National Healthy Mothers Healthy Babies Coalition (NMHB): Is a recognized leader and resource in maternal and child health, reaching an estimated 10 million health care professionals, parents, and policymakers through its membership of more than 100 local, state and national organizations.
National Healthy Start Association (NHSA): Describes the Healthy Start program and provides general information about infant mortality, low-birth-weight infants, and racial disparities in perinatal outcomes. Includes a directory of Healthy Start programs nationwide and a newsletter. Funded by MCHB, Healthy Start provides community-based, culturally competent, family-centered, comprehensive perinatal health services to women, infants and their families in communities with very high rates of infant mortality.
Healthy Start Infant Mortality Awareness Campaign
: Celebrate Day 366…Every Baby Deserves a Chance
celebrates babies living beyond the first year of life and encourages people from around the nation to take action in support of the Healthy People 2020 goal to improve the health and well-being of women, infants, children and families.
National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Resource Center: Provides up-to-date information on the prevention of pregnancy loss, SIDS and sudden unexpected infant and child death; and on bereavement support for families facing losses. Information on child care and SIDS, first responders, and a safe sleep environment is included, as are a training toolkit, statistics, and multimedia resources.
Preconception Health Cafe: This online course provides an overview on the importance of preconception health, with specific focus on the first six of the CDC 10 Recommendations to Improve Preconception Health and Healthcare. These recommendations include individual responsibility across the lifespan, consumer awareness, preventive visits, interventions for identified risks, interconception care and pre-pregnancy checkup.
Reducing Infant Mortality: This film advocates for a health care system in which it will be standard procedure for mothers and babies to thrive and not merely survive through birth and early life by encouraging policy makers to consider a system that holds prevention as a high priority.
Text4baby: Is the first free health text messaging service in the United States.Text4baby supports moms by providing accurate, text-length health information and resources in a format that is personal and timely, using a channel she knows and uses.
U.S. Department of Health and Human Services: The Department of Health and Human Services protects the health of all Americans and provides essential human services.
HHS Advisory Committee on Infant Mortality
: The committee represents a public and private partnership at the highest level to provide guidance and focus attention on policies and resources required to address and reduce infant mortality. The committee also provides advice on how to best coordinate Federal, State, local and private programs designed to deal with the health and social problems impacting infant mortality.
HHS Office on Women’s Health
: The Office on Women's Health provides national leadership and coordination to improve the health of women and girls by educating professionals and the public, informing policy and supporting model programs, so that all women and girls achieve the best possible health.
Office of Minority Health
: The Office of Minority Health is dedicated to improving the health of racial and ethnic minority populations through the development of health policies and programs that will help eliminate health disparities.
o Office of Minority Health (OMH) Preconception Peer Educators Program (PPE): As part of the OMH A Healthy Baby Begins with You national campaign, PPE works with the college age population, enlisting college students to serve as peer educators on college campuses and in the community, to help disseminate essential preconception health messages.
The databases listed below are excellent tools for identifying data, additional literature and research, and programs addressing infant mortality and pregnancy loss. Reproduced with permission from Lorenzo, S. 2010. Infant Mortality and Pregnancy Loss Knowledge Path. Washington, DC: Georgetown University Maternal and Child Health Library.
Community Health Status Indicators (CHSI): Presents county-specific data on health status indicators obtained from a variety of federal agencies including the Department of Health and Human Services, the Environmental Protection Agency, the Census Bureau, and the Department of Labor. Use the indicators to compare a county with counties similar in population composition and selected demographics and to characterize the overall health of a county and its citizens to support health planning. Select a state and county and click on Display Data. Select Measures of Birth and Death to view birth measures and infant mortality rates. CHSI is a service of HHS.
Data2010 - The Healthy People 2010 Database: Contains the most recent monitoring data for tracking Healthy People 2010. To obtain data about infant mortality and contributing factors, click on the field, Data by Focus Area. Under the field “Select a Focus Area,” choose “16 – Maternal, Infant, and Child Health” from the pop-up menu. Next, click on the button for “Include Related Objectives from Other Focus Areas in the Table.” Click on the Submit button. This data set is provided by NCHS via CDC Wonder.
Health Data Interactive (HDI): Presents interactive online data tables on pregnancy and birth, health conditions and risk factors, health care access and use, and mortality. Infant, neonatal, and post-neonatal mortality data and data about preterm birth and low birth weight are presented. HDI is a service of NCHS.
KIDS COUNT Data Center: Contains information about this national and state-by-state effort to track the status of children in the United States. Generate custom graphs, maps, ranked lists, and state-by-state profiles of birth outcomes, among other child health indicators. KIDS COUNT is a project of the Annie E. Casey Foundation (AECF).
Linked Birth/Infant Death Data Set: Contains data about infant births/deaths occurring within the United States to U.S. residents. Data are available by county of mother’s residence, infant’s age, underlying cause of death, gender, birth weight, birth plurality, birth order, gestational age at birth, period of prenatal care, maternal race and ethnicity, maternal age, maternal education and marital status. This data set is provided by NCHS via CDC Wonder.
PeriStats: Provides access to maternal and infant health- related data at the national, state, county and city level by aggregating data from several government agencies and organizations. Topics include the timing and frequency of prenatal care, preterm birth, low birth weight, infant mortality, tobacco use and health insurance coverage. Over 60,000 graphs, maps and tables are available, and data are referenced to the relevant source. PeriStats is a service of the March of Dimes.
Pregnancy Risk Assessment Monitoring System (PRAMS): Presents state-specific, population-based data on maternal attitudes and experiences before, during and immediately following pregnancy. PRAMS is a surveillance project of the CDC and state health departments.
State Health Facts Online: Contains state-level data on more than 500 health topics. View individual state profiles, or compare data for all states by category. For infant mortality data, click on the Health Status category and select one of several subcategories under Infants. For data about low birth weight and prematurity, click on the Health Status category, and select one of several subcategories under Births. This system is provided by the Kaiser Family Foundation.
Title V Information System (TVIS): Contains data from annual Title V Block Grant applications and reports submitted by all 59 U.S. states and jurisdictions. TVIS is a service of MCHB.
VitalStats: Presents tables, data files, and reports that allow users to access and examine birth and perinatal mortality data interactively. This system is provided by NCHS.