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AMCHP Family Involvement & Leadership: AMCHP focuses its efforts to increase family involvement in Title V programs and leadership/activities by supporting family representatives in all aspects of AMCHP's work and providing resources on family involvement. Activities include supporting family representation on all AMCHP committees and work groups and developing or identifying resources for family involvement. AMCHP provides voting rights in the organization through the Family Delegate position. For more information, contact Michelle Jarvis, program manager, family involvement, at (202) 775-1472 or

  • Family Scholars Program: The Family Scholars Program (FSP) represents an opportunity to identify, encourage and train family leaders. This 10 month program strives to provide Family Scholars with the knowledge, tools and resources to enhance their development as family leaders, and to promote policies, programs and systems at the national, state and/or local-level that address important issues impacting the health and well-being of women, children and families, including children and youth with special health care needs.
  • Family Delegates: Each Title V program paying dues may designate up to five delegates who have voting rights and the fifth delegate seat must be held by a family liaison to the Title V program. This delegate is called a ‘Family Delegate’.
  • State Profiles in Comprehensive Family Participation: This issue brief highlights six states with differing levels of family participation and what methods they employ to involve families.

Boston Public Health Commission Father Friendly Initiative: FFI provides opportunities for low to no income men living the Boston area to become responsible members of their families and community. The core principles of FFI are based on the belief that father involvement makes an important impact in the life of a child.

Center for Family Involvement: With the Partnership for People with Disabilities at the Virginia Commonwealth University, the center works with families to increase their skills as advocates, mentors and leaders in order to support children and youth with special health care needs and their family caregivers.

Early Steps Southernmost Coast Family Resource Specialists (FRS): The FRS is a resource for families served through local state Early Steps and is a community link that supports family centered efforts with each local Early Steps. FRS advocates for families and solicits feedback from families within early intervention programs to ensure quality of programs, policies and the delivery of early intervention services.

Families, Disability and Culture Guide: This online guide is designed to enhance family-centered and -directed practices and cultural competency at both individual and organizational levels. With the belief that families have a pivotal role as the major influence in the lives of CYSHCN, the guide encourages family-professional collaboration as fundamental to practice and serve children and their families.

The Family Involvement Center: The mission of the Family Involvement Center is to provide assistance and support for family caregivers while helping policymakers, agencies and providers to transform systems, all to ensure that children and youth with emotional, behavioral or mental health disorders succeed and become productive adults.

Family Involvement Conference: Based on the belief that active family involvement in the educational process is the key to effective schools and student achievement, the goal of the conference is to bring together parents and academic professionals in a common forum to address issues that are vital to the well being and success of our youth.

Family Resource Center Supporting Father Involvement: The SFI project is a family focused, evidenced-based intervention aimed at effectively engaging fathers as key participants in family support and strengthening. It is also a method of fostering organizational development and growth for agencies and professionals serving at risk families.

Family Voices: The mission of Family Voices is to achieve family-centered care for all children and youth with special health care needs. They provide families with tools and support in order to make informed decisions, advocate on behalf of CYSHCN for improved public and private policies and serve as a trusted resource on health care.

Harvard Family Research Project: The Harvard Family Research Project recognizes the growing demand for information on effective ways to support family involvement in early learning and development and is committed to strategies that support children’s learning in school, at home and in the community.

Institute for Patient- and Family-Centered Care: IFPCC provides leadership to advance the understanding and practice of patient- and family-centered care. In partnership with patients, families and health care professionals, the institute seeks to integrate these concepts into all aspects of health care.

Maternal and Child Health Bureau (MCHB): MCHB is part of the Health Resources and Services Administration, U.S. Department of Health and Human Services and is responsible for meeting the needs of the MCH populations of the United States and its jurisdictions.

MCHB Leadership Education in Neurodevelopmental and other Related Disabilities Program: LEND provides funding to programs within university systems and collaborates with local university hospitals and health care centers. The purpose of the LEND training program is to improve the health of infants, children, and adolescents with disabilities. This is accomplished by preparing trainees from diverse professional disciplines to assume leadership roles in their respective fields and by insuring high levels of interdisciplinary clinical competence.

MCHB  National Center for Family/Professional Partnerships Program: NCFPP offers technical assistance to community leaders and partners with key stakeholders in order to provide leadership on implementing the core components of a system for CYSHCN in which families partner in decision making at all levels and are satisfied with the services they receive.

MCH Library at Georgetown University: Children and Youth with Special Health Care Needs Knowledge Path: This knowledge path offers high quality resources and reports on data, effective programs, policy and research aimed at systems of care that are family-centered, community based and culturally competent.

MCH Organizations Database: This database contains contact information for groups concerned with specific illnesses and disorders, genetic services providers, government offices and agencies, national centers for children and youth with special health care needs, networks and support groups for parents, professional associations and providers of services and products.

MCH Navigator – a learning portal for maternal and child health professionals, students, and others working to improve the health and well-being of women, children, and families.

  • Increasing Meaningful Partnerships between Families and MCH Partnerships - the focus of the lesson is on the importance of involving and partnering with families at all levels of programming and leadership in public health organizations—especially organizations that work with children and individuals with special health care needs.
  • Family Advocacy and Involvement in Title V Programs - this webcast reviews the role of family advocates in collaborating with Title V program staff.
  • Title V: The Evolution of Family Partnership - this section of the MCH Timeline is divided into six modules, and includes a discussion with Merle McPherson, MD, MPH on past Title V programs, as well as personal stories from individual families who struggled prior to Title V reinvention.
  • Every Child Deserves a Medical Home - a five-minute introductory video provides an overview of “Every Child Deserves a Medical Home” and is followed by several short feature narratives presented by pediatricians, other health care providers, and families who—in their own words—describe what “medical home” means to them.

Minnesota Title V MCH Needs Assessment Fact Sheet: Pregnant Women, Mothers and Infants: Male-Father Involvement in Reproductive Health and Parenting highlights the issues surrounding a lack of male involvement in childbirth, the size and spread of the problem in Minnesota, and the grave outcomes for women and children resulting from such. The fact sheet also provides information on interventions in the state and details their effectiveness.

National Alliance for Secondary Education and Transition: NASET recognizes family involvement in a child’s education as the single most important factor in school success and achievement. NASET promotes family involvement in order to support the social, emotional, physical, academic and occupational growth of children.

Parent to Parent USA:  P2P USA presents contact information for statewide parent-to-parent programs. The programs provide emotional support and information to families of children and youth with special health care needs. In particular, the programs match parents seeking support with trained and experienced veteran parents who have shared the experience of disability in the family. P2P USA also offers technical assistance and resources to parents interested in building, improving and evaluating a program.

Sibling Support Project: This national effort is dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental or mental health concerns. The project includes online discussion groups for siblings and for parents of the siblings and presents publications for and about siblings.

Where is the F in MCH? Father Involvement in African American Families: The objective of this study was to review the historical contexts and current profiles of father involvement in African American families, identify barriers to, and supports of, involvement, evaluate the effectiveness of father involvement programs and recommend directions for future research, programs, and public policies.