American College of Obstetrics and Gynecologists (ACOG): Is the leading authority on women’s health.
Association of Maternal & Child Health Programs (AMCHP): Offers information and resources about its programs to help state public health agencies and communities address infant mortality.
Association of SIDS and Infant Mortality Programs (ASIP): Hosts information about the National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Project IMPACT, which is part of a national consortium of four centers supported by the MCHB, to address infant mortality and pregnancy loss.
Association of State and Territorial Health Officials (ASTHO): MCH program: Addresses issues affecting families, women of reproductive age, infants, children and adolescents, including those with special healthcare needs. The ASTHO MCH program aims to increase state capacity to develop and implement policies and programs that respond to challenges and effectively promote state MCH.
Association of Women’s Health, Obstetric and Neonatal Nurses (AWHONN): Works to improve and promote the health of women and newborns and to strengthen the nursing profession through the delivery of superior advocacy, research, education and other professional and clinical resources to nurses/other health care professionals.
Centers for Disease Control and Prevention (CDC): Offers resources and initiatives aimed at reducing infant mortality and pregnancy loss that include:
CityMatCH: Contains tools and resources for implementing the Perinatal Periods of Risk (PPOR) approach for mobilizing communities to reduce feto-infant mortality in U.S. cities.
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD): Contains research and grant information, publications and other resources for health professionals, researchers, and families about pregnancy and infant and child health topics, including pregnancy loss, birth defects, prematurity, and infant pregnancy loss, birth defects, prematurity, and infant mortality. Reports describe the research and training supported by the NICHD Pregnancy and Perinatology Branch to improve the outcomes of pregnancy, reduce infant mortality, and minimize maternal and infant morbidities.
First Candle: Hosts information about the National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Program Support Center, which is part of a national consortium of four centers supported by MCHB, to address infant mortality and pregnancy loss. Provides a hotline in English and Spanish for expectant and new parents on ways to help their infants survive and thrive, for parents who have experienced the death of an infant, and for professionals working with families. Also see First Candle resources about infant mortality risk reduction, bereavement and safe sleep environments.
Healthy People 2020: Offers information and publications about this national health-promotion and disease- prevention initiative that is coordinated by the Office of Disease Prevention and Health Promotion (ODPHP). View the maternal, infant and child health focus area to learn about the objectives related to infant mortality and pregnancy loss. See data about the objectives.
Joint Center for Political and Economic Studies: The Courage to Love Commission: Presents papers, PowerPoint presentations, and fact sheets from this initiative that analyzed racial and ethnic disparities in infant mortality. Papers include:
March of Dimes (MOD): Contains resources for health professionals and expectant and new parents in English and Spanish about preconception and prenatal care, birth defects, pregnancy loss, prematurity, bereavement, and how to get involved in improving infant health by reducing the incidence of birth defects and infant mortality. MOD offers perinatal statistics (including infant mortality rates), continuing-education modules, medical reference information, and video and audio resources.
Maternal and Child Health Bureau (MCHB): Leads projects and initiatives on behalf of American women, infants, children, adolescents and their families. Initiatives include Healthy Start, a program to address factors contributing to infant mortality, low birth weight, and other adverse perinatal outcomes in high-risk populations.
Maternal and Child Health Library at Georgetown University Infant Mortality and Pregnancy Loss Knowledge Path: This site links to recent, high-quality resources about infant mortality and pregnancy loss and to factors that contribute to these public health problems, such as birth defects, injuries, prematurity and low birth weight. A section on sleep environment and the prevention of Sudden Infant Death Syndrome is included. A separate resource on these topics for families is also available.
The MCH Library website has been redesigned to provide a fresh look and feel and additional resources including pages focusing on professional, family, school resources and resources on MCH professional education. An enhanced search feature allows users to select display formats and to create their own resource lists by checking off items from materials found in their searches. An updated sidebar and an A-Z Index guide visitors through the site as well.
A new feature highlights the 75th Anniversary of Title V, and presents “75 Books for 75 Years,” a book list of seminal and historical materials that are nominated by MCH Library visitors. An “In the News” page highlights significant developments related to public health and links to numerous federal and national public health news sources. The site will continue to be developed with new features and new information, and user suggestions are always welcome. Please see here or contact the library at firstname.lastname@example.org. To receive notices of new features and information, subscribe to the weekly MCH Alert.
National Center for Child Death Review: Describes the child death review process for infants, children and adolescents from birth through age 18, offers tools for child death review teams, provides state program information and presents child mortality data by state.
National Center for Cultural Competence (NCCC): Hosts information about the National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Project, which is part of a national consortium of four centers supported by MCHB to address infant mortality and pregnancy loss. Provides technical assistance and develops resources on cultural and linguistic competence to help programs effectively address racial and ethnic disparities in perinatal, infant and child mortality and pregnancy loss.
National Fetal and Infant Mortality Review Program (NFIMR): Contains resources for implementing the fetal and infant mortality review (FIMR) method, including a directory of state and community FIMR projects, program descriptions, data-abstraction forms, sample laws to implement and safeguard FIMR proceedings and an online discussion group. NFIMR is a collaborative effort between the ACOG and MCHB.
National Healthy Mothers Healthy Babies Coalition (NMHB): Is a recognized leader and resource in maternal and child health, reaching an estimated 10 million health care professionals, parents, and policymakers through its membership of more than 100 local, state and national organizations.
National Healthy Start Association (NHSA): Describes the Healthy Start program and provides general information about infant mortality, low-birth-weight infants, and racial disparities in perinatal outcomes. Includes a directory of Healthy Start programs nationwide and a newsletter. Funded by MCHB, Healthy Start provides community-based, culturally competent, family-centered, comprehensive perinatal health services to women, infants and their families in communities with very high rates of infant mortality. Recent publications include:
- National Infant Mortality Awareness Month Toolkit (2010): This toolkit aims to help Healthy Start projects promote the effectiveness of programs and efforts to reduce infant deaths, low birth weight, preterm births and disparities in perinatal outcomes.
National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Resource Center: Provides up-to-date information on the prevention of pregnancy loss, SIDS and sudden unexpected infant and child death; and on bereavement support for families facing losses. Information on child care and SIDS, first responders, and a safe sleep environment is included, as are a training toolkit, statistics, and multimedia resources.
Office of Minority Health: Infant Health: Contains statistics about infant mortality among racial and ethnic groups and a fact sheet and list of links to publications and websites about infant mortality. Initiatives include:
- A Healthy Baby Begins with You: Presents information about this national print and radio campaign to raise awareness about infant mortality with an emphasis on the African-American community. Includes campaign materials and infant mortality disparities fact sheets. Also presents information about another phase of the campaign, the Preconception Peer Educators (PPE) Program, which is designed to educate the college-age population about preconception health and care and to train them to serve as ambassadors for their peers who are not attending college.
Text4baby: Is the first free health text messaging service in the United States.Text4baby supports moms by providing accurate, text-length health information and resources in a format that is personal and timely, using a channel she knows and uses.
The databases listed below are excellent tools for identifying data, additional literature and research, and programs addressing infant mortality and pregnancy loss. Reproduced with permission from Lorenzo, S. 2010. Infant Mortality and Pregnancy Loss Knowledge Path. Washington, DC: Georgetown University Maternal and Child Health Library.
Community Health Status Indicators (CHSI): Presents county-specific data on health status indicators obtained from a variety of federal agencies including the Department of Health and Human Services, the Environmental Protection Agency, the Census Bureau, and the Department of Labor. Use the indicators to compare a county with counties similar in population composition and selected demographics and to characterize the overall health of a county and its citizens to support health planning. Select a state and county and click on Display Data. Select Measures of Birth and Death to view birth measures and infant mortality rates. CHSI is a service of HHS.
Data2010 - The Healthy People 2010 Database: Contains the most recent monitoring data for tracking Healthy People 2010. To obtain data about infant mortality and contributing factors, click on the field, Data by Focus Area. Under the field “Select a Focus Area,” choose “16 – Maternal, Infant, and Child Health” from the pop-up menu. Next, click on the button for “Include Related Objectives from Other Focus Areas in the Table.” Click on the Submit button. This data set is provided by NCHS via CDC Wonder.
Health Data Interactive (HDI): Presents interactive online data tables on pregnancy and birth, health conditions and risk factors, health care access and use, and mortality. Infant, neonatal, and post-neonatal mortality data and data about preterm birth and low birth weight are presented. HDI is a service of NCHS.
KIDS COUNT Data Center: Contains information about this national and state-by-state effort to track the status of children in the United States. Generate custom graphs, maps, ranked lists, and state-by-state profiles of birth outcomes, among other child health indicators. KIDS COUNT is a project of the Annie E. Casey Foundation (AECF).
Linked Birth/Infant Death Data Set: Contains data about infant births/deaths occurring within the United States to U.S. residents. Data are available by county of mother’s residence, infant’s age, underlying cause of death, gender, birth weight, birth plurality, birth order, gestational age at birth, period of prenatal care, maternal race and ethnicity, maternal age, maternal education and marital status. This data set is provided by NCHS via CDC Wonder.
PeriStats: Provides access to maternal and infant health- related data at the national, state, county and city level by aggregating data from several government agencies and organizations. Topics include the timing and frequency of prenatal care, preterm birth, low birth weight, infant mortality, tobacco use and health insurance coverage. Over 60,000 graphs, maps and tables are available, and data are referenced to the relevant source. PeriStats is a service of the March of Dimes.
Pregnancy Risk Assessment Monitoring System (PRAMS): Presents state-specific, population-based data on maternal attitudes and experiences before, during and immediately following pregnancy. PRAMS is a surveillance project of the CDC and state health departments.
State Health Facts Online: Contains state-level data on more than 500 health topics. View individual state profiles, or compare data for all states by category. For infant mortality data, click on the Health Status category and select one of several subcategories under Infants. For data about low birth weight and prematurity, click on the Health Status category, and select one of several subcategories under Births. This system is provided by the Kaiser Family Foundation.
Title V Information System (TVIS): Contains data from annual Title V Block Grant applications and reports submitted by all 59 U.S. states and jurisdictions. TVIS is a service of MCHB. To identify state efforts to reduce infant mortality, conduct several searches:
- Select Program Data; scroll to “Medicaid/Non Medicaid Comparison” and select “Infants deaths per 1,000 live births”; select a state and Annual Report Year; and click on “Start Search”
- Select Measurement and Indicator Data; select “National Outcome Measures”; select “Most Recent Year Available” or “Multi-Year Report”; select a state and infant mortality measure; click on “Start Search”
- Select Measurement and Indicator Data; scroll to “State Data”; select “State Priority Needs Keyword Search”; select “Keyword: Morbidity/Mortality” and “Population: Infants”; click on “Start Search”
- Select Measurement and Indicator Data; scroll to “State Data”; select “State Outcome Measures”; select “Search By Keyword/Population”; select a state and “Keyword: Morbidity/Mortality” and “Population: Infants”; click on “Start Search”
- View State Snapshots of Maternal and Child Health for a summary of state infant mortality data
VitalStats: Presents tables, data files, and reports that allow users to access and examine birth and perinatal mortality data interactively. This system is provided by NCHS.