Association of Maternal & Child Health Programs (AMCHP): Offers information and resources about its programs to help state public health agencies and communities address infant mortality.
Association of SIDS and Infant Mortality Programs (ASIP): Hosts information about the National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Project IMPACT, which is part of a national consortium of four centers supported by the Maternal and Child Health Bureau (MCHB) to address infant mortality and pregnancy loss.
Centers for Disease Control and Prevention (CDC): Offers resources and initiatives aimed at reducing infant mortality and pregnancy loss that include:
CityMatCH: Contains tools and resources for implementing the Perinatal Periods of Risk (PPOR) approach for mobilizing communities to reduce feto-infant mortality in U.S. cities.
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD): Contains research and grant information, publications and other resources for health professionals, researchers and families about pregnancy and infant and child health topics, including pregnancy loss, birth defects, prematurity, and infant mortality. Reports describe the research and training supported by NICHD's Pregnancy and Perinatology Branch to improve the outcomes of pregnancy, reduce infant mortality, and minimize maternal and infant morbidities.
First Candle: Hosts information about the National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Program Support Center, which is part of a national consortium of four centers supported by the Maternal and Child Health Bureau (MCHB) to address infant mortality and pregnancy loss. Provides a hotline in English and Spanish for expectant and new parents on ways to help their infants survive and thrive, for parents who have experienced the death of an infant, and for professionals working with families. Also see First Candle's resources about infant mortality risk reduction, bereavement and safe sleep environments.
Healthy People 2020: Offers information and publications about this national health-promotion and disease-prevention initiative. View the maternal, infant, and child health focus area to learn about the objectives related to infant mortality and pregnancy loss.
Joint Center for Political and Economic Studies: The Courage to Love Commission: Presents papers, PowerPoint presentations, and fact sheets from this initiative that analyzed racial and ethnic disparities in infant mortality. Papers include:
March of Dimes (MOD): Contains resources for health professionals and expectant and new parents in English and Spanish about preconceptional and prenatal care, birth defects, pregnancy loss, prematurity, bereavement, and how to get involved in improving infants' health by reducing the incidence of birth defects and infant mortality. Offers perinatal statistics (including infant mortality rates), continuing-education modules, medical reference information, and video and audio resources.
Maternal and Child Health Bureau (MCHB): Describes MCHB's projects and initiatives on behalf of America's women, infants, children, adolescents and their families. Initiatives include Healthy Start, a program to address factors contributing to infant mortality, low birthweight, and other adverse perinatal outcomes in high-risk populations.
Maternal and Child Health Library at Georgetown University Infant Mortality and Pregnancy Loss Knowledge Path: This document links to recent, high-quality resources about infant mortality and pregnancy loss and to factors that contribute to these public health problems, such as birth defects, injuries, prematurity and low birthweight. A section on sleep environment and the prevention of Sudden Infant Death Syndrome is included. A separate resource on these topics for families is also available. The MCH Library website has been redesigned to provide a fresh look and feel and additional resources including pages focusing on professional, family, and school resources and resources on MCH professional education. An enhanced search feature allows users to select display formats and to create their own resource lists by checking off items from materials found in their searches. Please see here or contact the library at firstname.lastname@example.org. To receive notices of new features and information, subscribe to the weekly MCH Alert.
National Center for Child Death Review: Describes the child death review process for infants, children and adolescents from birth through age 18, offers tools for child death review teams, provides state program information and presents child mortality data by state.
National Center for Cultural Competence (NCCC): Hosts information about the National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Project, which is part of a national consortium of four centers supported by the Maternal and Child Health Bureau (MCHB) to address infant mortality and pregnancy loss. Provides technical assistance and develops resources on cultural and linguistic competence to help programs effectively address racial and ethnic disparities in perinatal, infant and child mortality and pregnancy loss.
National Fetal and Infant Mortality Review Program (NFIMR): Contains a wealth of resources for implementing the fetal and infant mortality review (FIMR) method, including a directory of state and community FIMR projects, program descriptions, data-abstraction forms, sample laws to implement and safeguard FIMR proceedings and an online discussion group. NFIMR is a collaborative effort between the American College of Obstetricians and Gynecologists (ACOG) and the Maternal and Child Health Bureau (MCHB).
National Healthy Start Association (NHSA): Describes the Healthy Start program and provides general information about infant mortality, low-birthweight infants, and racial disparities in perinatal outcomes. Includes a directory of Healthy Start programs nationwide and a newsletter. Funded by the Maternal and Child Health Bureau (MCHB), Healthy Start provides community-based, culturally competent, family-centered, comprehensive perinatal health services to women, infants and their families in communities with very high rates of infant mortality. Recent publications include:
- National Infant Mortality Awareness Month Toolkit (2010): This toolkit aims to help Healthy Start projects promote the effectiveness of programs and efforts to reduce infant deaths, low birthweight, preterm births and disparities in perinatal outcomes.
National Sudden and Unexpected Infant/Child Death and Pregnancy Loss Resource Center: Provides up-to-date information on the prevention of pregnancy loss, SIDS, and sudden unexpected infant and child death; and on bereavement support for families facing losses. Information on child care and SIDS, first responders, and a safe sleep environment is included, as are a training toolkit, statistics, and multimedia resources.
Office of Minority Health: Infant Health: Contains statistics about infant mortality among racial and ethnic groups and a fact sheet and list of links to publications and websites about infant mortality. Initiatives include:
- A Healthy Baby Begins with You: Presents information about this national print and radio campaign to raise awareness about infant mortality with an emphasis on the African-American community. Includes campaign materials and infant mortality disparities fact sheets. Also presents information about another phase of the campaign, the Preconception Peer Educators (PPE) Program, which is designed to educate the college-age population about preconception health and care and to train them to serve as ambassadors for their peers who are not attending college.
The databases listed below are excellent tools for identifying data, additional literature and research, and programs addressing infant mortality and pregnancy loss. Reproduced with permission from Lorenzo, S. 2010. Infant Mortality and Pregnancy Loss Knowledge Path. Washington, DC: Georgetown University Maternal and Child Health Library.
Community Health Status Indicators (CHSI): Presents county-specific data on health status indicators obtained from a variety of federal agencies including the Department of Health and Human Services, the Environmental Protection Agency, the Census Bureau, and the Department of Labor. Use the indicators to compare a county with counties similar in population composition and selected demographics and to characterize the overall health of a county and its citizens to support health planning. Select a state and county and click on Display Data. Select Measures of Birth and Death to view birth measures and infant mortality rates. CHSI is a service of the Department of Health and Human Services (DHHS).
Health Data Interactive (HDI): Presents interactive online data tables on pregnancy and birth, health conditions and risk factors, health care access and use, and mortality. Infant, neonatal, and postneonatal mortality data and data about preterm birth and low birthweight are presented. HDI is a service of the National Center for Health Statistics (NCHS).
KIDS COUNT Data Center: Contains information about this national and state-by-state effort to track the status of children in the United States. Generate custom graphs, maps, ranked lists, and state-by-state profiles of birth outcomes, among other child health indicators. KIDS COUNT is a project of the Annie E. Casey Foundation (AECF).
Linked Birth/Infant Death Data Set: Contains data about infant births/deaths occurring within the United States to U.S. residents. Data are available by county of mother's residence, infant's age, underlying cause of death, gender, birthweight, birth plurality, birth order, gestational age at birth, period of prenatal care, maternal race and ethnicity, maternal age, maternal education and marital status. This data set is provided by the National Center for Health Statistics (NCHS) via CDC Wonder.
PeriStats: Provides access to maternal and infant health-related data at the national, state, county and city level by aggregating data from several government agencies and organizations. Topics include the timing and frequency of prenatal care, preterm birth, low birthweight, infant mortality, tobacco use and health insurance coverage. Over 60,000 graphs, maps and tables are available, and data are referenced to the relevant source. PeriStats is a service of the March of Dimes.
Pregnancy Risk Assessment Monitoring System (PRAMS): Presents state-specific, population-based data on maternal attitudes and experiences before, during and immediately following pregnancy. PRAMS is a surveillance project of the Centers for Disease Control and Prevention (CDC) and state health departments.
State Health Facts Online: Contains state-level data on more than 500 health topics. View individual state profiles, or compare data for all states by category. For infant mortality data, click on the Health Status category and select one of several subcategories under Infants. For data about low birthweight and prematurity, click on the Health Status category, and select one of several subcategories under Births. This system is provided by the Kaiser Family Foundation.
Title V Information System (TVIS): Contains data from annual Title V Block Grant applications and reports submitted by all 59 U.S. states and jurisdictions. To identify state efforts to reduce infant mortality, conduct several searches: (1) Select Program Data; scroll to Medicaid/Non Medicaid Comparison and select Infants deaths per 1,000 live births; select a state and Annual Report Year; and click on Start Search. (2) Select Measurement and Indicator Data; select National Outcome Measures; select Most Recent Year Available or Multi-Year Report; select a state and infant mortality measure; click on Start Search. (3) Select Measurement and Indicator Data; scroll to State Data; select State Priority Needs Keyword Search; select Keyword: Morbidity/Mortality and Population: Infants; click on Start Search. (4) Select Measurement and Indicator Data; scroll to State Data; select State Outcome Measures; select Search By Keyword/Population; select a state and Keyword: Morbidity/Mortality and Population: Infants; click on Start Search. (5) View State Snapshots of Maternal and Child Health for a summary of each state's infant mortality data. TVIS is a service of the Maternal and Child Health Bureau (MCHB).
VitalStats: Presents tables, data files, and reports that allow users to access and examine birth and perinatal mortality data interactively. This system is provided by the National Center for Health Statistics (NCHS).