Administration for Children and Families, U.S. Department of Health and Human Services (HHS):  Responsible for federal programs that promote the economic and social well-being of families, children, individuals and communities. 

·         Federal program information on the Personal Responsibility Education Program (PREP), Pregnancy Assistance Fund and Abstinence Education funds is available here 

Agency for Healthcare Research and Quality: As one of 12 agencies within the U.S. Department of Health and Human Services, AHRQ works to improve the quality, safety, efficiency and effectiveness of health care for all Americans, and supports research that helps people make more informed decisions and improves the quality of health care services. 

AMCHP National Center for Health Reform Implementation: Provides information covering key aspects of the Affordable Care Act that pertain to maternal and child health populations. Recent publications include: 

·         Health Reform: What’s in it to Promote the Medical Home? (October 2010)

·         Health Reform: What’s in it for Adolescents? (October 2010)

·         Health Care Reform: What’s in it for Children and Youth with Special Health Care Needs? (October 2010)

American Academy of Pediatrics: Organization of 60,000 pediatricians committed to the attainment of optimal physical, mental and social health and well-being for all infants, children, adolescents and young adults. 

·         The National Center for Medical Home Implementation: Resource for health professionals, families, and anyone interested in creating a medical home for all children and youth.

·         One-Pager: Children and the Medical Home 

Bright Futures: A joint initiative of the American Academy of Pediatrics and the U.S. Department of Health and Human Services dedicated to the principle that every child deserves to be healthy and that optimal health involves a trusting relationship between the health professional, the child, the family and the community as partners in health practice.


·         Preventive care/screening based on the U.S. Preventive Services Task Force can be found here.

·         Immunizations recommended by the Advisory Committee on Immunization Practices at the Centers for Disease Control and Prevention can be found here.


The Catalyst Center: The Catalyst Center is funded by the federal Maternal and Child Health Bureau to serve as the national center on improving financing of care for children and youth with special health care needs. The Center creates publications and products, answers technical assistance questions, researches innovative state-based financing strategies, guides stakeholders to outside resources, and connects those interested in working together to address complex health care financing issues. See the Publications and More section of the organization’s website for additional resources on health care reform including:


·         What Do Children with Special Health Care Needs Require from Health Care Reform? (July 2009)

·         Health Care Reform and Children with Special Health Care Needs: Coverage is Not Enough (July 2009)

·         The Essential Components of Health Care Reform for Children with Special Health Care Needs (September 2009)


The Commonwealth Fund: Private foundation working to promote a high performing health care system that achieves better access, improved quality, and greater efficiency, particularly for society's most vulnerable, including low-income people, the uninsured, minority Americans, young children and elderly adults.


·         Publication - Innovation in Medicare and Medicaid will be Central to Health Reform’s Success (June 2010)


Family Voices: Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities by providing families with tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care. Federal government website managed by the US Department of Health and Human Services.

HHS Office of Adolescent Health: The Office of Adolescent Health (OAH) coordinates adolescent health programs and initiatives across the U.S. Department of Health and Human Services related to adolescent health promotion and disease prevention. 

Kaiser Family Foundation: Private, nonprofit foundation focusing on the major health care issues facing the United States, as well as the United States’ role in global health policy. 

·         Health Reform Source: Get a state-by-state view of health reform implementation, public opinion, and research and analysis.

Maternal and Child Health Bureau, Health Resources and Services Administration (HHS): Information on the Title V Maternal and Child Health Services Block Grant and other related programs and efforts.

Medicaid Health Plans of America: Nonprofit organization working to develop and advance public policy that controls costs and improves access and delivery of quality health care to Medicaid members. 

·         Publication - Role of Medicaid Health Plans in Patient-Centered Medical Homes (September 2010)  

National Academy for State Health Policy: Independent academy of state health policymakers working together to identify emerging issues, develop policy solutions, and improve state health policy and practice. Online health reform resources include:  

·         The Affordable Care Act and Children with Special Health Care Needs: An Analysis and Steps for State Policymakers (January 2011) - A publication by the National Academy for State Health Policy (NASHP) for the Catalyst Center

·         Publication - Building Medical Homes in State Medicaid and CHIP Programs (June 2009)

·         Archived Webinar - Health Homes for Medicaid Enrollees with Chronic Conditions: A Conversation with CMS and States Regarding the ACA State Plan Option (August 2010)

·         Publication - Strategies States Can Use to Support the Infrastructure of a Medical Home (May 2008)  

National Adolescent Health Information and Innovation Center: Works to improve the health of adolescents by serving as a national resource for adolescent health information and research, and to assure the integration, synthesis, coordination and dissemination of adolescent health-related information. 

·         Publication - The Patient Protection and Affordable Care Act of 2010: How Does it Help Adolescents and Young Adults?  

National Committee for Quality Assurance (NCQA): Nonprofit organization dedicated to improving health care quality. Patient-Centered Medical Home information is available here 

Patient Centered Primary Care Collaborative (PCPCC): The PCPCC was created in late 2006, when approached by several large national employers with the objective of reaching out to the American College of Physicians, the Academy of Family Physicians, and other primary care physician groups in order to: 1) facilitate improvements in patient-physician relations, and 2) create a more effective and efficient model of healthcare delivery.  

Society for Adolescent Medicine: National multidisciplinary organization committed to improving the physical and psychosocial health and well-being of all adolescents through advocacy, clinical care, health promotion, health service delivery, professional development and research.


U.S. Department of Health and Human Services: The official federal website on the Affordable Care Act from the U.S. Department of Health and Human services can be found here