By Treeby Brown
Senior Program Manager, Children & Youth with Special Health Care Needs
AMCHP’s State Public Health Autism Resource Center (SPHARC) will soon be releasing a new report, “Roles for State Title V Programs in Building Systems of Care for Children and Youth with Autism Spectrum Disorder and Other Developmental Disabilities.” The report addresses state Title V program efforts to address the increasing numbers of children identified and diagnosed with autism spectrum disorder and other developmental disabilities (ASD/DD) as they try to meet diverse and often complex needs of these children and their families across the six core outcomes for children and youth with special health care needs (CYSHCN).
The purpose of the AMCHP Policy Framework (Framework) is to help states, primarily Title V programs, determine appropriate roles and approaches to pursue in building systems of care for children and youth with autism spectrum disorders and other developmental disabilities (ASD/DD). The Framework also provides examples from state programs to demonstrate the breadth and depth of involvement from state Title V programs and their partners. An overall theme of the state approaches is how Title V programs that initiate comprehensive efforts to meet the needs of children and youth with ASD/DD and their families can use ASD/DD as a mechanism to improve systems of care for all CYSHCN.
State examples of varied focus and innovative mechanisms are provided in the Framework, including:
· Overall Leadership in the Systems of Care
· Building Partnerships Across Public and Private Sectors
· Family Participation
· Quality Improvement
· Use of Available Resources
· Coordination of Service Delivery
· Data Infrastructure
· Outreach and Awareness
The Framework outlines a range of roles for Title V as leader, partner and facilitator; provides state resources and examples to share with policy makers in leadership, outreach and awareness, and family participation; highlights ongoing challenges in data and financing, as well as opportunities for collaborative approaches; and provides opportunities for peer-to-peer technical assistance.
The Framework will be available on the AMCHP SPHARC website in the fall of 2011. For more information about the Framework, please contact Treeby Brown.