April 2010

Download a PDF of this issue.

A note about this month’s AMCHP Pulse:

This issue of AMCHP Pulse is a special joint edition with our friends and colleagues at the American Academy of Pediatrics (AAP). AMCHP and AAP have a long history of collaboration at the national level and that partnership is mirrored in the states among public health leaders, pediatricians, and families in Title V agencies and AAP state chapters. This issue highlights the shared commitment that AMCHP and AAP have to promoting child health and improving health systems that serve children and their families. We hope you enjoy hearing about our shared successes and are inspired to join AMCHP and AAP in the work that is yet to come.

From the Presidents

The Medical Home: Where We’ve Been, Where We Are, Where are We Going

By Phyllis J. Sloyer, RN, PhD, FAHM, FAAP 

No single concept evokes such a powerful calling in me for a national response that moves individuals, communities, and states to get it right for children as does the term medical home. The values that medical home embodies: family-centered care, trusting relationship, continuity of care, comprehensiveness of care are so pivotal to quality child health care and a child’s future that I consider it to be one of the central themes of child health policy. [read more]

Medical Home Getting Long-Deserved Recognition

By Judith S. Palfrey, M.D., FAAP
President, American Academy of Pediatrics 

As I begin drafting this article with the knowledge of the passing of the Patient Protection and Affordable Care Act endorsed by the American Academy of Pediatrics (Academy) — I cannot help but reflect on what an exciting time in history this is!  In 2010 — even beyond the health care reform discussions — it seems that everybody is talking about the medical home. And for good reason. The medical home is the system best suited to meet the health care concerns of all our citizens. [read more]


From the CEOs

Strategies to Achieve Medical Home Implementation

By Mike R. Fraser, PhD 

It is a pleasure to introduce this issue of Pulse, featuring the work of our members, and share the pages with colleagues and friends from the American Academy of Pediatrics, one of AMCHP’s long-standing and most important partners. This issue of AMCHP Pulse features the topic of medical home. The “medical home” concept is powerful: it is about building systems and supporting practices to be more efficient, more effective, and more comprehensive. It is also simple – nothing makes more sense than a coordinated, family and patient-centered approach for providing care. Why then do 42 percent of U.S. children not experience care within a medical home? What do we need to do to get every child access to a medical home? [read more] 

Medical Home: The Standard Care for All

Errol R. Alden, M.D., FAAP
Executive Director/CEO, American Academy of Pediatrics 

The American Academy of Pediatrics has a long history of collaboration with the HRSA Maternal and Child Health Bureau and Title V. Indeed, it was through the collaboration of MCHB, Family Voices, and the AAP that the initial concept of “medical home” for children with special health care needs was developed. Medical homes have since expanded to include acute, preventive and chronic care. More recently, the AAP in collaboration with the American College of Physicians, the American Osteopathic Association and the American Academy of Family Physicians developed the Principles of the Patient Centered Medical Home in 2007. Over the last 30 years, medical homes have moved from a remarkable, visionary concept to becoming the standard of care for all of us — children and adults. [read more] 



State Medicaid, CHIP, and Title V Collaborating to Build Medical Homes

By Michelle Alletto, MPA
Senior Manager, Public Policy & Government Affairs, AMCHP

On Wednesday, March 10, AMCHP, in partnership with the National Academy of State Health Policy (NASHP), the Maternal and Child Health Bureau, and the American Academy of Pediatrics held a meeting in conjunction with AMCHP’s annual conference to explore the topic: “Making Connections: State Medicaid, CHIP, and Title V Collaborating to Build Medical Homes.”  [read more]

MCHB: An Update and Next Steps on Medical Homes  

By Marie Y. Mann, MD, MPH
Genetic Services Branch, Maternal and Child Health Bureau 

Not unlike the tortoise in the fable “The Tortoise and the Hare,” we are moving steadfastly toward the goal of optimal child health and development within a comprehensive, integrated system of care for all children, including those with special health care needs. We believe achieving this goal will rely on adoption of the patient/family centered medical home (P/FCMH) model, which combines the central focus on the patient and family with core tenets of primary care and continuous quality improvement. This model broadens the traditional focus on acute care to include prevention and well care as well as chronic care management. It provides a framework for addressing health in the context of social, behavioral, psychological and environmental influences as expressed by the Life Course Perspective. [read more]

New PCPCC Center! A Focus on Consumer Involvement and Leadership     

By Christine Bechtel
Vice President of the National Partnership for Women & Families  

Dr. Warwick Charlton
Chief Medical Officer, Medfusion 

Julie J. Martin
Communications Manager, The John D. Stoeckle Center for Primary Care Innovation  

The primary objective of the newly established Patient Centered Primary Care Collaborative’s (PCPCC) Center for Consumer Engagement (CCE) is to ensure the medical home model is truly patient-centered. The CCE will accomplish this by facilitating consumer involvement and leadership in the design and evaluation of the Patient Centered Medical Home (PCMH), strengthening the consumer voice in the PCPCC, and developing a set of "Best Practices" for consumer engagement in PCMH. The CCE partners with consumer groups in their existing efforts. [read more]

Real Life Story

Title V: Giving Families Strength - Q & A with Nicole Schomberg

Nicole Schomberg is the Project Director at Family TIES of Nevada for the Nevada State Implementation Grant for Improving Systems of Services for Children and Youth with Special Health Care Needs. She also is a board member for the Down Syndrome Network of Northern Nevada, and a parent representative on Nevada’s Title V Advisory Committee. Nicole and her husband have three children – Roman, 23, Heather, 21, and Becky, 18. Soon after Heather was born, she was diagnosed with Down syndrome and two holes in her heart, requiring intensive care and services from a variety of healthcare providers. Please read on to learn more about Nicole, her family and how Title V supported their health care journey. [read more]


Member to Member

We asked a couple of members the following question: What opportunities are there for Title V and chapters of the AAP to collaborate at the state level? [read more]




Who's New

Meet the New National Center for Medical Home Implementation Staff

The National Center for Medical Home Implementation, funded via a cooperative agreement from the Health Resources and Services Administration, Maternal and Child Health Bureau, has experienced many exciting changes over the past year. The National Center is thrilled to introduce its team — including the following new staff members who contribute all or part of their time to implementing and advancing medical home initiatives, policies and practices on a daily basis.
[read more]

New MCH Leaders

AMCHP is pleased to recognize the recent promotions of two of our Federal partners. Dr. Ursula Bauer, Director of the CDC’s Chronic Disease Center, selected Wanda Barfield, MD to be the new Division of Reproductive Health’s (DRH) Director. Some people know Wanda from working with DRH’s MCH Epidemiology Program, while others may know of her work in the field of neonatology. Dr. Bauer also announced John Lehnherr will be joining the Director’s office as Dr. Bauer’s Deputy Director. These appointments will become effective June 1, 2010. Congratulations to these two good friend of maternal and child health, and AMCHP! [read more]


Success Stories

The Pennsylvania Medical Home Initiative (EPIC-IC)

By Renee Turchi, MD, MPH; Deborah Walker, M.Ed.; Molly Gatto, MHA  

Educating Practices in Community Integrated Care (EPIC-IC) has provided training to over 100 practices in all six regions of Pennsylvania since its inception in 2001. EPIC-IC is a collaborative effort of the Pennsylvania Department of Health (PA DOH), family organizations, and the Pennsylvania Chapter of the American Academy of Pediatrics. The Maternal and Child Health Bureau founded the initiative in 2001 and continued to support medical home through 2009. Title V funding through the PA DOH has supported the initiative from 2002 to the present. [read more]

Baby Steps to Health Program

By Cynthia DeLago, MD, MPH
Director, Pediatric and Adolescent Ambulatory Center
Albert Einstein Medical Center
Philadelphia, PA

The Baby Steps to Health Program is one of 10 Healthy Tomorrows* grants that received funding in 2009. The premise of the Baby Steps to Health Program is to help medically and socially at-risk infants and their families transition health care from the Neonatal Intensive Care Unit (NICU) to the Pediatric Center at the Albert Einstein Medical Center. To do this, a team of physicians, nurses and social workers devised ways to promote easy transitioning, starting with identifying eligible babies in the NICU, scheduling their first appointments in the Pediatric Center, and developing care plans, so the parents know all the upcoming doctor appointments, what to expect, and whom to contact for supplies, equipment and help. [read more]

View from Washington

How Will Health Reform Promote Medical Homes?

By Brent Ewig, MHS
Director of Public Policy & Government Affairs, AMCHP   

Greetings again from our nation’s capital. I will address this issue’s main topic of medical homes in a moment but first wanted to provide a quick re-cap of some policy related highlights from AMCHP’s recent Annual Conference. We are thrilled to report that over 60 members, families, and friends made visits to Capitol Hill while in town to advocate for increased funding for the Title V Maternal and Child Health Services Block Grant! [read more]

Get Involved

AAP Launches New Audio Series on Autism
The series, “Sound Advice on Autism,” produced by the American Academy of Pediatrics (AAP), contains audio interviews with developmental and behavioral pediatricians, a pediatric neurologist, autism researchers and other parents of children with autism. [read more]

NICHD Launches Online SIDS Curriculum for Nurses
The National Institute of Child Health and Human Development (NICHD) is now offering an online version of its Continuing Education (CE) Program on SIDS Risk Reduction. The curriculum is designed to inform pediatric, obstetric and neonatal nurses—as well as nurses who educate families and caregivers about caring for infants—of the latest risk-reduction strategies for SIDS. It also helps to increase nurses' knowledge of ways to communicate SIDS risk-reduction information to parents and caregivers. Nurses who successfully complete the curriculum will receive credit for 1.1 contact hours. [read more]

Data and Trends

See a chart on the active relationship between AAP chapter and state MCH/Title V director/agency.



View and download resources on Medical Home. [read more]


AMCHP Conference Highlights

See pictures from our 2010 Annual Conference.


Board of Directors

Meet AMCHP's Board of Directors



Meet AMCHP's staff.