Hall of Fame Quarterback Jim Kelly to Headline Plenary on Newborn Screening
By Lauren Raskin Ramos, MPH
Director of Programs, AMCHP
Jim Kelly, Hall of Fame quarterback for the Buffalo Bills, will share the story of his family and their quest to increase public awareness, early detection and treatment of Krabbe Disease at the AMCHP Annual Conference. Jim Kelly and his wife, Jill established the Hunter’s Hope Foundation in 1997 after their infant son, Hunter, was diagnosed with Krabbe Disease (Globoid-Cell Leukodystrophy). Despite being told that Hunter would not live past 14 months of age, Hunter lived eight years and became the inspiration for Jim Kelly to join national efforts to advocate for comprehensive newborn screening.
Jim Kelly is the only quarterback to take his team to four consecutive super bowls and one of the few National Football League quarterbacks to be inducted in the Hall of Fame on his first nomination. Jim Kelly will be joined by representatives from the March of Dimes, MCHB, CDC and the New York State Department of Health, to discuss the Newborn Screening Saves Lives Act.
Visit Kim Kelly’s website to learn more about his many football achievements.