Data and Trends


CSHCN Performance Measures and More

The Data Resource Center website (DRC) provides easy access to the most recent findings for your state on the MCHB CSHCN Performance Measures. Also available are findings on over 100 other measures relevant to assessing needs and system performance for children, youth and families. Using the DRC website you can stratify findings from both the National Survey of Children With Special Health Care Needs (NS-CSHCN) 2001 and 2005/06 by numerous subgroups of children and youth in your state, such as race/ethnicity, income, insurance status and more by simply pointing and clicking. Substate data findings are also available in the state-by-state profile by geographic area.

In addition, hundreds of child health measures are also available from the 2003 National Survey of Children’s Health (NSCH). And, coming in mid-May 2009, new measures will be available from the 2007 NSCH as well.

Autism, ASD and Other Developmental Disabilities
The 2005/06 NS-CSHCN contains national and state level data on autism and ASD. You can also find information on other behavioral conditions, emotional problems, Down Syndrome, and development delay. In the 2003 NSCH you can find additional national level data on developmental delay, behavior or conduct problems, ADHD and autism. The DRC website provides easy to download, user-generated state profiles, tables, graphs and all-state comparison sheets for you to copy and paste directly into your needs assessment. The DRC provides expert help and assistance by calling (503) 494-1930 or email.

Where in the U.S. is there an Autism Speaks Insurance Reform Initiative?
The map from Autism Votes provides a graphical representation of where each of the states stand with regard to their progress on creating an autism insurance reform law. Find this map online here.