Association of SIDS and Infant Mortality Programs (ASIP)
ASIP offers information about this association of health and human service providers committed to infant mortality bereavement support and risk-reduction activities. Resources include a list of state SIDS contacts and SIDS materials for families and health professionals. Publications include:
Centers for Disease Control and Prevention (CDC)
CDC offers numerous resources and initiatives aimed at reducing infant mortality that include:
CDC, NCBDDD Guide to Preconception Care
CDC's Division of Reproductive Health: Maternal and Infant Health
Contains links to reports, data and other resources about promoting infant health and preventing infant illness and mortality, including SIDS and other sudden, unexplained infant death (SUID). Recent publications and initiatives include:
- Racial/ethnic disparities in infant mortality -- United States, 1995-2002. (2005).
- Sudden, Unexplained Infant Death Initiative (SUIDI). Presents information about this initiative to improve the investigation and reporting of SUID, in collaboration with other federal agencies and organizations representing medical examiners, coroners, death-scene investigators, emergency medical personnel, law-enforcement officials, forensic nurses, SIDS researchers, infant-death-review experts, and parents who have experienced a death of an infant. Includes the SUIDI reporting form (2006) for state and local use in infant-death-scene investigations.
CDC's National Center for Health Statistics (NCHS)
Includes national data about infant mortality and contributing factors. Recent publications include:
CDC's Racial and Ethnic Approaches to Community Health (REACH 2010).
Describes this initiative that supports community coalitions in designing, implementing, and evaluating community-driven strategies to eliminate health disparities in six priority areas, one of which is infant mortality. Also see CDC's National Center on Birth Defects and Developmental Disabilities (NCBDDD).
CityMatCH has tools and resources for implementing the Perinatal Periods of Risk (PPOR) approach for mobilizing communities to reduce feto-infant mortality in U.S. cities. PPOR is a joint initiative of CityMatCH and the Centers for Disease Control and Prevention (CDC), March of Dimes (MOD), and Maternal and Child Health Bureau (MCHB).
First Candle/SIDS Alliance
Contains information about its efforts to eliminate SIDS, stillbirth, and other causes of infant mortality through research and education while supporting bereaved families. Resources include a series of fact sheets for expectant and new parents about reducing the risk of infant death; education and training materials for health and human service professionals; and a training manual and fact sheets for child care providers. Resources for bereaved families include a hotline, grief packets, referrals to local support groups, conferences, and online resources to help families connect and share experiences. Spanish-language materials for families and professionals are also available. This national nonprofit organization seeks to unite families, caregivers, health professionals and researchers with government, business and community-service groups to eliminate infant mortality and support bereaved families. Recent publications and initiatives include:
- Bedtime Basics: An Infant Sleep Campaign. Presents information and materials for this educational outreach campaign to help prevent infant deaths caused by unsafe sleep practices.
- Model Program: The Most Important Modeling Job of Your Life. Presents information and materials for this national professional education campaign that urges nurses in neonatal intensive care units and well-baby nurseries to incorporate safe sleep policies into their existing protocols.
- SIDS and infant death program manual and trainer's guide. (2006). Supports the staff of local and state programs to provide comprehensive Sudden Infant Death Syndrome and Infant Death (SIDS/ID) risk reduction and bereavement program services so that children have the best possible chance for survival and if a child does die, his family is appropriately supported.
March of Dimes (MOD)
March of Dimes has produced resources for health professionals and consumers in English and Spanish about preconceptional and prenatal care, birth defects, bereavement, and how to get involved in improving the health of infants by reducing the incidence of birth defects and infant mortality. March of Dimes also offers perinatal statistics (including infant mortality rates), perinatal nursing education modules, and medical reference information.
MedlinePlus: Sudden infant death syndrome
This link offers a select list of authoritative health information sources about SIDS for health professionals and families. The list is available in English and Spanish. Includes a link to an automatic search in MEDLINE for recent articles on SIDS. Also view the MedlinePlus list of health topics for links to related resources about pregnancy, pregnancy loss, infant and early childhood health, and birth defects. MedlinePlus is developed by the National Library of Medicine (NLM).
National Center for Cultural Competence (NCCC)
NCCC includes information about its Sudden Infant Death Syndrome (SIDS)/Other Infant Death (ID) Project, a set of promising practices for cultural and linguistic competence in addressing SIDS/ID, a literature review, a self-assessment checklist, and links to related resources about cultural competence and infant mortality. Information is available in English and Spanish. NCCC is a part of the Georgetown University Center for Child and Human Development. Publications include:
National Healthy Start Association (NHSA)
NHSA describes the Healthy Start program and provides general information about infant mortality, low birthweight infants, and racial disparities in perinatal outcomes. Includes a directory of Healthy Start programs nationwide and a newsletter. Funded by the Maternal and Child Health Bureau (MCHB), Healthy Start provides community-based, culturally competent, family-centered, comprehensive perinatal health services to women, infants and their families in communities with very high rates of infant mortality. NHSA has also produced a toolkit to help raise community awareness in order to prevent infant mortality. To access the toolkit, visit http://www.healthystartassoc.org/tkguide.html. (Also see the Maternal and Child Health Library's Healthy Start Collection Database for a catalog of materials developed by Healthy Start programs.)
National Institute of Child Health and Human Development (NICHD)
NICHD has research and grant information, publications and other resources for health professionals, researchers and consumers about pregnancy and infant and child health topics, including infant mortality and related factors. NICHD is part of the National Institutes of Health (NIH). Initiatives include Back to Sleep Campaign. Contains information about this national campaign aimed at health professionals, child care providers, and families to promote placing infants to sleep on their backs to reduce the risk of SIDS. Includes research reports, outreach materials in English and Spanish, and videotapes. The campaign is sponsored by NICHD, the Maternal and Child Health Bureau (MCHB), the American Academy of Pediatrics (AAP), First Candle/SIDS Alliance, and the Association of SIDS and Infant Mortality Programs (ASIP). Recent resources include:
National MCH Center for Child Death Review
This Center provides information on the child death review process for children ages 0-18; offers tools for child death review teams; and presents child mortality data by state, causes of child death, and prevention strategies. The national center is funded by the Maternal and Child Health Bureau (MCHB). Recent resources include:
National Resource Center for Health and Safety in Child Care (NRC)
NRC presents each state's child care licensure regulations that includes those involving safe sleep environments for infants. Also offers Sudden infant death syndrome risk reduction standards, a compilation of the 10 national standards on reducing the risk of SIDS in child care settings based on the manual, Caring for our children: National health and safety performance standards -- Guidelines for out-of-home child care, 2nd ed. (2002).
National SIDS & Infant Death Project IMPACT
IMPACT offers contact information for state SIDS programs, links to state SIDS laws, and links to state child care licensing about safe sleep environments. Also offers information about innovative resource development projects conducted by state SIDS/ID programs and a listserv to support state and local infant mortality and risk reduction programs. Includes facts about SIDS and practices to help lower the risk of SIDS. Also includes links to research on the causes of sudden unexpected infant death. Project IMPACT, a partnership between the Association of SIDS and Infant Mortality Programs (ASIP) and the Maternal and Child Health Bureau (MCHB), creates opportunities for collaboration among federal, state and local organizations in response to SIDS/ID risk reduction and bereavement support issues. Resources include two tool cards for health professionals developed with the Association of Clinicians for the Underserved:
National Sudden Infant Death Resource Center (NSIDRC)
NSIDRC includes many resources for health professionals, policymakers, and families about SIDS and other unexpected infant death, stillbirth, miscarriage, and bereavement. Resources include fact sheets, booklets, bibliographies, Spanish-language materials, and a bibliographic database. NSIDRC is sponsored by the Maternal and Child Health Bureau (MCHB). Recent publications include:
- After sudden infant death: Facing anniversaries, holidays, and special events. (2005).
- Death of a child the grief of the parents: A lifetime journey, rev. ed. (2005).
- Directory of SIDS state program coordinators. (2005).
- Helping children cope with grief when an infant dies. (2005).
- Safe sleep for your baby around the clock: Birth to 12 months. (2005).
- Selected resources for grieving parents, their families, friends, and other caregivers. (2005).
- SIDS deaths by race and ethnicity, 1995-2001. (2004).
- Sudden, unexpected infant death: Information for the emergency medical technician. (2004).
- Responding to a sudden, unexpected infant death: The professional's role. (2004).
- Table of SIDS death and mortality rates, 1983-2003. (2005).
- What is SIDS?, rev. ed. (2005). A Spanish-language version, ¿Qué es el SMIS?, rev. ed. (2005) is also available.
Office of Minority Health: Infant Mortality/SIDS
Contains statistics about infant mortality among racial and ethnic groups. Also presents a fact sheet about infant mortality and a list of links to publications and Web sites on the topic. Initiatives include:
- A Healthy Baby Begins With You. Describes this national education campaign to raise awareness about infant mortality with an emphasis on the African American community.